anyone tried imuran for crohn"s with stricture

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Regular Member

Date Joined May 2008
Total Posts : 21
   Posted 5/5/2008 10:55 PM (GMT -7)   
for those of you who helped me< am still much indebted> no need for surgery now as dr> still doesn"t know what is up> thinks perhaps imuran will help clear inflammation and may even prevent more strictures> so today no surgery but no one can tell me what to eat> nightowl is tired> too much time trying to figure out things i think doctors and others should be helping me with> so grateful you are all out there> thanks> nightowl oh yes< there was no cronicity with the second colonoscopy (ugh) and so doctor couldn"t get to the stricture to biopsy it anyway> not sure if that means they didn"t rule out small bowel cancer> who knows> already tried cipro
when first diagnosed< pentassa working if take every four hours on dot and endocort does not work> doctor says it is not a bacterial overgrowth or h phlori (at least two things are known) but still doesn"t help me make food decisions> ahh< i will sign off< rambling tired owl>

Regular Member

Date Joined Apr 2007
Total Posts : 99
   Posted 5/6/2008 4:53 AM (GMT -7)   
Hi, i have three strictures, one one them is very narrow, scope could not passs. The strictures do not bother me. I am doing very well, no pain, no rush to go to the toilet, my weight is stable as never before.
I am currently on imuran 150mg a day, fish oil high dose, folic acid, probiotics and homeopath remedy.
I did not follow any diet, avoid red meat and everthing that is processed, drink rice and soya milk.
I might start a specific carbohydrate diet to see if i have have more improvements. All the best!!

Regular Member

Date Joined Jul 2007
Total Posts : 239
   Posted 5/6/2008 5:06 AM (GMT -7)   
I was put on Imuran for a stricture, didn't work and I ended up with surgery. Doc said it was too far along for the Imuran to help, but it was worth a shot. Imuran is working great as maintenance now though. Get some sleep!!
diagnosed 11/06, solving the mystery of years of on/off abdominal pain. No more "it's just a virus". 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bowel resection 9/07. Doc says no active disease, but flare-ups anyway. 11 year old son with IBS-C, on Bentyl.

Veteran Member

Date Joined Feb 2007
Total Posts : 1010
   Posted 5/6/2008 5:29 AM (GMT -7)   
Depends on whether the primary cause of the narrowing is from inflammation or scar tissue. If inflammation, then definitely imuran should help a lot. If scar tissue -- then you have to decide how badly the stricture is impacting on your quality of life because medicine is not going to open up the stricture. If it is a small stricture they might try a balloon dilatation or stricturplasty. But resection might be your best bet.

Either way, it seems that a trial of imuran might be advisable. You said endocort doesn't work. What has been your experience with systemic steroids -- prednisone?

30+ years living with Crohn's.

Regular Member

Date Joined May 2008
Total Posts : 21
   Posted 5/6/2008 7:45 PM (GMT -7)   
you guys are great> because there was no cronicity with either colonoscopy (both took place within a year) doctor still thinks it is crohn"s because the stricture is in the terminal ileum>

she said< i am sure it will show cronicity< but of course she couldn"t get to there> she said before the second colon> that if there were no cronicity she would have to get together with the other doctors and see what to do next>

originally her plan was to do a resection as these same doctors thought that this stricture was scarred
and was too far narrowed (not sure how they knew) for balloon or strictureplasty> she tried me on
endocort at that time and i still had dull pressing pain in upper abdomen (which he attributed to referred pain from the stricture)>

i take adderol and depakote> all the tests only showed inflammation> i do not think they know how or why the stricture came about and just today when i told another doctor about the imuran she said< go see this homeopath> if there is no cronicity on either colonoscopy< >>>>(my computer is broken< sorry)
so< right now i am having no dairy> went off foxomax last frebruary< began the fish oil l tsp but so hard to take (even tho it doesnt smell) does anyone have fish oil and amounts that work for them __esp> the person with three strictures and what is the homeopatic remedy and what do you eat for foods and the person for whom the strictures were too far gone< do you think then it is wise to do what she suggests before mine get that way or try the homeopathy? can i do both? i am so tired and no one seems to have any answers> do i eat wheat or not< do i eat sugar or not< any splenda? rice or potatoes again or not< just bakery sourdough or not? nutritionist wants me to drink blue and red juices and doctor wants me to take the oj with calcium and d as i am very very low in d and hate dairy> anyway< i have eliminated all but chicken< chicken soup< mashed up rutabegas< cinnamon< garlic< salt< ginger< fish< some sour dough bread added< york peppermint patties and then at night as a chaser to the fish oil some m and m"s (left over when i was doing no fibre and yes sugar__i>e> fish white breads< chicken< rice< rice crakers< cheese crakers (annie"s)< some whole foods sirloin burgers and milano cookies< cake and lactaid milk>

i am so tired> so will stop rambling> your emails make me think i should do the imuran as if it is inflammation< it might make it stop>

this doctor who told me to see a homeopathic doctor (she is both) while i wait for the blood work to come back from prometheus to see if i can metabolize it< told me that the homeopathic doctor may want me to get off my adderol< depakote and pentassa> all i know is that i am willing to dispense with the add drugs but i do know that if i take the pentassa exactly every four hours< four times a day< the pain is not there (unless i eat or drink something weird which i cannot tell what that might be or if it is if i eat too big a meal) anyway< advice please about amoutns of meds and where to get pure probiotics
except for the probiotics (which i am taking two pro_b eights in the a>m> does anyone know if i should be taking more or spreading them out___i am taking all natural nordic natural vitamens> a synergy two times a day(multi) two b twelves and three calcium tablets with one vitamen d three> i am drinking a teaspoon of the artic cod liver oil lemon flavor but it is like drinking oil and i just can"t take it tonight>
oh yes< also drinking tropicana pomegranate blueberry juice or pom juices or tropicana oj with calcium and d but does anyone know of a better idea for the omega oil that doesn"t smell like fish but that i do not have to swallow> if it is inflammation< i would love to dry vitamen d three and that oil (as much as i can tolerate__so how much is a lot) as well as more pro_biotics if anyone thinks that would work_esp> if they think i should take some at night>

i do not like dairy but am def> in the osteo range before i took the fosomax and probably back there now> i was trying to eat yogurt but could only stomach the aspartmane kind columbo i think it is< vanilla> now i am afraid to eat that (gave up the diet coke about ^ cans a day habit a while ago) but not having any dairy< not that i miss it but just wondering what things you eat with the three strictures> do you worry about the one that is closed up obstructing??????? help help help> thanks again< each of you were so thoughtful and i will look forward to hearing from you tomorrow if possible so i can move forward> sweet dreams :-) :-) :-)

Regular Member

Date Joined May 2008
Total Posts : 21
   Posted 5/6/2008 7:58 PM (GMT -7)   
p>s> doctor does not want to try preg> thinks imuran (for life) with pentassa should clear up the
inflammation and keep matters at bay (and perhaps let them know if the stricture is inflammation or scarring like they thought) seems that there should be some imaging test to know for sure as many docs can"t in that far even on a good day>

i think i can deal with quality of life if i knew a) what the stricture was from and b) rule out cancer and figure out a diet that let me believe that it was not promoting cancer and c) since on a good day i have one bm in the a>m and never had d that is not a concern and d) know that even if i went on the immuran that the adderol or something else i was eating or doing was still going to cause the inflammation or stricturing and i had gone on the immuran for six _ nine months while i found out (like with the cronicity) that nothing was learned>

since you all wrote< i am thinking immuran is better than a resection and i shouldn"t go nuts about it> on other hand< please tell me besides proteins< what vegetables you can eat with a stricture> i am literally eating
under two grams of sol> fibre a day (and i am a person< although only five feet and now one hundred and eight pounds ((from one hundred eighteen or fifteen)) who used to binge on candy and carbs< loving them as much as i love love my salads and broccolli< cauliflower< brussel sprouts< >>>i don"t care about fruits< but i miss my veggies> so< any suggestions and any suggestions about what and where to get the pro biotics that you take
as it appears that mine have maltrose etc> and if i am going to eat that stuff i want it in splenda not in my probiotics that i thought were so pure> so help please?!! thanks again> sorry to sound so desperate> sad sad sad sad sad

New Member

Date Joined May 2008
Total Posts : 4
   Posted 5/7/2008 10:14 AM (GMT -7)   
hi -- my GI gave me a low-residue diet for stricture - theory being the less that can get caught up in the stricture the better.There is a good one an Does seem to help.  It is not my idea of healthy but GI says it is only temporary until things subside. Also his suggestion to take multi-vitamin was excellent.  Just be careful that vitamins and any other supplements you take are ok'd by your pharmacist as Imuran can react badly with them.  I found that out the hard way.
Hope you feel better soon.

Regular Member

Date Joined May 2008
Total Posts : 21
   Posted 3/4/2009 12:33 AM (GMT -7)   
thanks for all of your help
you all have been a godsend. I
keep getting reprieves, however I hope
I am not playing russian roulette with my

hard to know what the inflammation
is from and if it can be relieved by
eliminating something/s rather than
adding immuran.

oh well, just got on to say thanks!

Regular Member

Date Joined Feb 2009
Total Posts : 39
   Posted 3/4/2009 12:10 PM (GMT -7)   

I had my first stricture last year. Very painful. My GI did a barium test and found scarring. He put me on prednisone to see if the problem was partially inflammation. Luckily the pred opened the stricure (after several weeks) so no surgery was needed. I was then put on Imuran as a maintenance drug. it's been 9 months now with no problems other than weight gain. I still have the scarring, of course, but the Imuran has prevented any more blockage.

Good luck!

Regular Member

Date Joined May 2008
Total Posts : 21
   Posted 3/7/2009 8:59 PM (GMT -7)   
That was so helpful! Thanks a lot Jordan! My stricture was thought to be scarring also (I guess due to
inflammation.) My doctor wants to try the immuran (never took preg. though I love that yours opened
with it) to see if it will get the inflammation down and so that no more strictures will appear.

Mine was painful only once when I probably had an almost obstruction. It was found 6/07 on the original
CT but no one told me I had one til almost a year later after a barium follow through. I still to this day know not
how it got there (from no pain to a stricture that is almost closed) Did you have other symptoms?
How long is yours? Any side effects (except for positive?!!!) with the Immuran.

What's the diff. between immuran and MP6? Any good food ideas (or is yours totally opened?)
for living with a stricture? Off to bed! Thanks again. Nightowl.

Regular Member

Date Joined May 2008
Total Posts : 21
   Posted 3/7/2009 9:08 PM (GMT -7)   
I found Hillary Steinhart's books to be helpful re diet for low residue.

Exercise, Yoga, Acupuncture, Massage and not obsessing about it all (hard to do)
have been the best medicine. I never ever thought I would exercise. When you
get backed into a wall it is amazing what one will do. So, for any of you who
think you can't exercise, Start with a beginner's yoga class or a class of
swimming aerobics. I found that my hips went to osteoperotic this past DEXA
so I guess I in fact do have Crohn's. (denial much?!) Anyway, feeling more
positive and very much blessed for all of you out there who reached out to
me when I was really really freaked out. Those times will happen again. So
glad you are all there.

Oh yes, getting some sleep is also the next best medicine! over and out: nightowl

Regular Member

Date Joined Feb 2009
Total Posts : 62
   Posted 3/7/2009 9:59 PM (GMT -7)   
I have been on Imuran for CD with cronic strictures. For the record, my strictures are from scarring. The imuran kept the inflamation down for over 15 years but the stricture needed to be dialated with a balloon during a colonoscopy. I'm up to every 3 months now. Other than that, the strictures do not bother me at all. Hope you are doing well.
Crohn's Disease - 29 years
Diagnosed at age 10 in 1979
1st ileosecal resection 1989
2nd colon resection 1993
Chronic "D" and arthritis
Chronic rectal stricture with colonoscopy every 3 months to dialate
Insomnia since 1980 - I love my ambien!
SCUBA diver, Master's degree student, college graduate, Pet therapist

Regular Member

Date Joined May 2008
Total Posts : 21
   Posted 3/7/2009 10:57 PM (GMT -7)   
unbelievable! you are an inspiration!
how does the scarring occur? inflammation?
is there any way of getting rid of inflammation besides what I wrote (and

I am 57 and have had this 2 years. I cannot even imagine what you
have been through.

my stricture is in the terminal ileum and they cannot get in there
(too much inflammation) to see anything or get biopsies and none
of the biopsies of other parts showed cronicity. did they
balloon your terminal ileum or just the stricture in the rectum?
is that just to open it up? every three months? you are my hero!

I know inflammation will subside if i would go to sleep. so really,
off to bed. Thanks so much for sharing!!!!!!!! nightowl
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