LDN side effects and risks?

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Veteran Member

Date Joined May 2003
Total Posts : 2481
   Posted 5/6/2008 7:41 AM (GMT -7)   
Does this drug work for everyone? Anyone taken it while pregnant?
Any info about this drug would be appreciated.

Dave D
Regular Member

Date Joined Aug 2005
Total Posts : 404
   Posted 5/6/2008 3:01 PM (GMT -7)   

It does not work for everyone. It worked for me for 3 months the all hell broke loose. All of a sudden, I had runny stools again. Then to make matters worse, I developed scleritis of the eye, from coming off the Entocort.

I'm not sure the LDN had anything to do with my rare condition but I would not try it again.

Dave D

Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Thought eye was healing and started taking Entocort counting on the residual (non-systemic portion) as treating the eye. Wrong. In October eye was not stabilized. 11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I had been requiring more and more Prednisone to keep the eye quiet. 12/07, retina tares and detaches again so it's still not working. Now blind in that eye. 1/08 now taking Remicade monthly with no real progress treating inflamed eye. Vision still <20/200. Inflamation starting to show up in good eye. I haven't given up yet, but it doesn't look promising.
Married with 4 grandkids.

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