Welcome Basketball Player,
So sorry your daughter is having such a hard time. That must be overwhelming for you. (((((((((( Hugs )))))))))
I am very new to Crohn's but have years of posting in the Lupus Forum. One huge question in my mind for you and your daughter . . . .
Who is treating her??? Hospital docs? Or specialty GI docs who deal with Crohn's AND Peds as a specialty. I know it would be a huge step to second-guess the hospital docs . . . but knowing the little I do about
this disease and the auto-immune aspect of it . . . I would DEMAND specialists. Its just too hard to put this big health puzzle together and the treatment plan requires skill and experience.
I don't want to scare you . . . just to suggest a second opinion with specialists if you haven't already done that.
Make sure to gather up all her medical information. Copies of bloodwork, tests, etc. For some reason, they are difficult to gather when you try to get them for a new doctor.
This has been a really supportive forum and I've learned a lot reading posts here. I hope you'll keep us posted on your daughter's progress.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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