If you knew then what you know now…….

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Regular Member

Date Joined Jan 2006
Total Posts : 303
   Posted 5/8/2008 6:28 PM (GMT -7)   

If you knew then what you know now…….



What medical testing would you have preformed  on yourself if you were newly diagnosed with CD today?


The more I learn about this disease the more I feel left out! From what I understand there are many things one should be tested for and I have never known about them. I guess it’s not about finding a cause for the disease but rather ruling out triggers and contributors. For instance I was not tested for celiac until I asked for it 2 years post diagnosis.


With me personally I developed a  MAJOR anxiety problem 2 months prior to being diagnosed with CD. My entire life I was outgoing and never had any issues socially.  I never had ANY symptoms of CD for 27 years!!!! Then one day I had a bowel obstruction and a social anxiety disorder.



How are the two conditions related? Hormone inbalance? Serotonin deficiency? Malabsorbtion causing my anxiety? I am now taking 200mg of Zoloft daily to keep the anxiety in check. I can get down to 150mg when I’m not on Prednisone.


Have any of you ever had any of the following testing done? Have the results helped your CD and what other testing should be considered?

-DHEA levels – precursor to hormones

-IGF- Human growth hormone levels

-Allergy testing- possible environmental or food allergy

- Is there a more specific test for Gluten other than the blood test?




Veteran Member

Date Joined Feb 2007
Total Posts : 734
   Posted 5/8/2008 6:33 PM (GMT -7)   
Well, I am highly allergic, have been since a child. Had shots back then. I did go in and have allergy testing. I'm allergic to peanuts, milk and chicken. Still eat chicken though. My hormones are okay, haven't had the gluten test, but that's a great idea. I think this disease breeds anxiety, how can we not be anxious, it's tough. Good questions though and I am going to ask for the Gluten test next time. I wonder if malabsorbtion is causing my fatigue. How would you test for that?

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 5/8/2008 6:39 PM (GMT -7)   
My partner at my old job was diagnosed w/ crohns. Further testing showed he had a SEVERE corn allergy instead. He had to cut out corn starch, corn syrup, regular corn, etc. It is in everything. But once he did, the bleeding stopped. He was about 40 years old I would guess. How one just develops such a random severe allergy I will never know. But they decided it wasn't crohns but the allergy causing crohns like symptoms.
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 5/8/2008 6:44 PM (GMT -7)   
There is a genetic test for celiac besides the blood test.

Veteran Member

Date Joined Feb 2007
Total Posts : 1010
   Posted 5/8/2008 7:13 PM (GMT -7)   
Where is the evidence that more testing produces better results. From where I sit, I sometimes wonder if it isn't the reverse. The more testing the worse the patient experiences the quality of their life. I think sometimes we become so consumed with illness that we forget to live.

30+ years living with Crohn's.

Veteran Member

Date Joined Feb 2007
Total Posts : 734
   Posted 5/8/2008 7:40 PM (GMT -7)   
Well heck, I think if a simple test can help us feel better, why not? He was allergic to corn and felt better after removing it from his diet. If I found a similar result I would be thankful, so for me, I think testing is soooooooooooooo very important. It sure can't hurt. Living is important I agree, but being happy and healthy while living makes it sooooo much better.
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