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Regular Member

Date Joined Apr 2008
Total Posts : 29
   Posted 5/9/2008 11:46 AM (GMT -7)   
Well, I had the colonoscopy and upper GI yesterday and the doctor said that I do not have Chrons, and while that's good, I'm still so very frustrated.  I have had a HIDA scan, CT, GI in my stomach and lower, colonoscopy, and they can't find anything.  I'm still having these horrible right upper quadrant pains coupled with lower abdominal pain.  It continues today, the day after the procedure.  I'm so frustrated, any thoughts, suggestions, comments???  I have naseau at least 3 times a week, in the morning I have horrible abdominal pain, I have the pain most of the time but mostly in the morning. I get right upper quadrant pain quiet often as well.  I have D more than I have normal, and I don't think I really ever have "normal" poops. They say that my gallbladder is fine, I have no gallstones.  Arrrrghhhhh it's not that I want something to be wrong, I just want an answer.  Thanks for listening to my whines.  Even though I haven't been diagnosed with Chrons, I would still love to hang out here.

Regular Member

Date Joined Jul 2007
Total Posts : 239
   Posted 5/9/2008 12:06 PM (GMT -7)   
My son has gone through abdominal pain, and alternated d and c since he was 2. After all the tests they've decided he has IBS and are treating him for that. I know how frustrating it is for you, hang in there.
diagnosed 11/06, solving the mystery of years of on/off abdominal pain. No more "it's just a virus". 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bowel resection 9/07. Doc says no active disease, but flare-ups anyway. 11 year old son with IBS-C, on Bentyl.

Regular Member

Date Joined Apr 2008
Total Posts : 29
   Posted 5/9/2008 12:17 PM (GMT -7)   
They had thought initially that it was IBS and gave me some meds for it but they didn't help.  How did they determine that's what it was?
P.S.  I forgot to add, my daughter, who is 5 yrs old now has been having the same probelms I do since she was 2. =/

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 5/9/2008 1:38 PM (GMT -7)   
Meds for IBS don't always daughter is on IBS meds and she says she doesn't notice much if any improvements from taking them...the Dr. did also tell her that IBS can be somewhat or even very well controlled with proper diet and regular exercise....even with taking IBS meds proper diet including enough fibre daily and avoidance of many things like sugar substitues (sugar alcohols especially) and fast-foods, fried foods, processed foods, caffeine as well.

If you're young daughter is also having issues, then possibly there's something going on in your environment like mold issues...there are many possibilities, but it's like looking for a needle in a haystack sometimes.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined Oct 2005
Total Posts : 1250
   Posted 5/9/2008 2:11 PM (GMT -7)   
I'm so glad you don't have Crohn's. But, I know it can be frustrating when they tell you everything is "fine." IBS came to my mind also. Have you posted any questions on the IBS forum? Just a suggestion. Good luck to you! Julie
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12.5mg a day
Imuran just increased to 75mg
Acidophilus daily
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)

Regular Member

Date Joined Apr 2008
Total Posts : 29
   Posted 5/9/2008 2:26 PM (GMT -7)   
Thank you so much!!  I posted over there.  I love the support here!

Veteran Member

Date Joined Nov 2005
Total Posts : 1024
   Posted 5/9/2008 2:31 PM (GMT -7)   
Sorry I am to hear this. It took about 20 years for the docs to figure it out. I was diagnosed at 34. You can see the evidence in my pedeatric[sp] med notes. When I was younger the docs said I was a sickly child. Then young teenager I was anorexic and or the opposite
[having problems spelling today]. After that I was doing drugs. That was simple to disprove.

As a young woman I was a frantic new mom. Then a pill popper. After living through all that the docs finally came up with it's all in my head.

By the time I got into the GI's office at 34 the doc literally tripped over the diagnoses. By that time it was an easy call.

You have to just hang in there. You are not having these symptoms for nothing. If it not crohn's there are so many other reasons. You'r body is telling you something. Just takes some time to figure it out sometimes.

BEST advice I can give is- Do not put you'r daughter and you'rself on the same boat so to speak. Keep the two apart. Do not ball the two of you in one. Her medical issues are her own even if you have the same problems. I was so tempted to see every weird [but normal] childhood problems that my kids were having as related. My kids finally had enough of me and decided to let me know. I thought I was looking after their own good and found out I was the one creating the problem.

Good luck to you

Regular Member

Date Joined Apr 2008
Total Posts : 29
   Posted 5/9/2008 3:23 PM (GMT -7)   
Thanks for the advice, I know they will figure it out sooner or later =)

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 5/9/2008 3:52 PM (GMT -7)   
Samantha, have you or you little girl been checked for Celiac disease? Or maybe you could be lactose intolerant.

Just a thought!! Hang out here all you like sweetie..

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 5/9/2008 4:31 PM (GMT -7)   
Hi Samantha I had a long DX with IBS before my CD became evident .I did have to work my diet to get a little relief. Low roughage probably would have helped me I did avoid some foods but I am much more cautious now. I am glad they didn't find any inflamation in you and hope with some testing and perhaps diet changes you and your daughter will improve. lol gail

Regular Member

Date Joined Apr 2008
Total Posts : 29
   Posted 5/9/2008 6:14 PM (GMT -7)   
Thank you so much.  If you don't mind me asking, what kind of dietary changes did you make?  I'm checking into different things now.  I think I may try a suggestion I saw some where about running.  I honestly am always so tired but it's at a point where I HAVE to do something.  I'm too young and my children depend on me right now, so I need to get myself in good health, with or without a diagnosis.  I'm so glad I found this board and you all, you have been so helpful!! yeah
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