Helping others think ahead

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Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 5/9/2008 5:47 PM (GMT -7)   
Most of us with crohns have had anticipatory anxiety about doing stuff.  Many of us never leave the house without planning ahead where the bathrooms are.  But once in a very very great while, you don't think ahead, Crohns is the last thing on your mind (for once!), and then you find yourself STUCK.  Or Crohns was on your mind and you didn't realize you would be stuck.  So... if it has happened to you, lets throw it out here so if any of us ever face that same situation you will know to plan ahead.
My biggest stuck moment:
After my aunt's funeral my family was in the car behind the hearse on the way to the cemetary.  The cemetary is a big open field (no woods) in the middle of the city.  Since it was in the middle of the city I wasn't too worried because there are gas stations and resturants everywhere.  I didn't think ahead that when we pulled down the long one way, one way, lane of the cemetary we would be stuck with 25+ cars behind us.  I ended up feeling very sick with no way to get out. I would have had to stop the burial and order everyone to back out to get my car out.  It was a little too far to break out in a sprint.  I made it to the end of the ceremony and through the wait to get our car out but I was DYING.  The first gas station I made it to had an out of order toilet.  I ran across a 4 lane divided highway (with the concrete barrier in the middle) to get to the McDonalds across the street.  I couldn't believe I made it. 
So my lesson to everyone: when you are mourning and not thinking about your bowels, remember to park your car on the street OUTSIDE the cemetary, not in the line with everyone else.
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 5/9/2008 7:46 PM (GMT -7)   
I can't help but be one of those CDers that always thinks ahead...we went to a funeral in which we had to go to the cemetary and we drove behind the limo in a camping van, looked tacky but I think it would have been tackier if I'd have pooped my pants at the cemetary.
This was before I got my potty-van.


My bum is broken....there's a big crack down the middle of it!  LOL  :)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/10/2008 9:13 AM (GMT -7)   
I ride a trolley to work just about everyday. I never eat right before I get on the trolley, for fear of that attack happening. I have finally learned to pay attention to each stop to see where bathrooms are. I have had two occaisions of being sick and just trying to get home and have to just hope and pray that I could find a BR eachtime. I have been lucky each time, but its been really close. And boy is that 40 minute ride a long one sometimesm when I am really nauseous and having D.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 5/10/2008 9:18 AM (GMT -7)   
On my way back from Florida. Not enough gas stations, on one of my really bad days. Ended up in the fetal position on
the back seat, looking and feeling like I was in labor!!

The worst part of that was, my porta-potty was sitting in my basement at home!!!

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

Regular Member

Date Joined May 2008
Total Posts : 22
   Posted 5/10/2008 9:35 AM (GMT -7)   
I went out walking in the woods with my husband(we wasn't married,he is very understanding)of course we was along way from the cabin.he found a place for me.he still loves me
55yrold female.dx.ibs in 1981,cd in 1987,multipl surg.on 6mpand entocort.

Veteran Member

Date Joined Feb 2007
Total Posts : 734
   Posted 5/10/2008 8:44 PM (GMT -7)   
It's pretty sad that we all have to worry and plan for restrooms along our daily lives. A big stressor but we all seem to manage. The comforting thing is that I'm not alone. My geographic place may be different but it's still there, Mcdonald's or whatever.

Regular Member

Date Joined Apr 2008
Total Posts : 195
   Posted 5/10/2008 9:02 PM (GMT -7)   
I agree with crohn'snme it is sad. I know lately, in the past yr, that I can't go anywhere at all for fear of having an accident in my pants. It's to the point where I won't eat anything before I leave the house. And I won't eat anything while I'm out, until I get home, because when I eat i just have to go to the BR non stop for a couple of hours, which makes running errands and things very irritating. Even though sometimes I get really hungry I will still wait.
Age:22/6"1'/138lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Warfarin, Prednisone :(, 6mp :( NOT WORKING
Problems:Fissure and Tags on rectum, blood clots, ChronicUTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s
Procedures: 3 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)

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