leg cramps & bumps around my mouth

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Veteran Member

Date Joined Jan 2003
Total Posts : 734
   Posted 5/12/2008 6:23 AM (GMT -7)   
Hi all - I haven't posted in a long time, but thought I would ask this since you all have so much knowledge and experience.  I have been in remission for a few years now - I love 6MP!  I have a flare everytime the seasons change - I can tell when it is going to happen.  Lately I have had leg and feet cramps really bad at night.  I asked for some bloodwork and I should get those results in the next day or so.  Any ideas about this?
Also, I did this last year and it lasted all summer and then went away and now it is starting back.  I get these small white bumps around my mouth.  They are right next to my lips - usually on my top lip.  They look almost like tiny zits, but nothing in them.  They come and go, but look bad and sometimes itch to the point that I make them look worse by messing with them.  Any ideas what this is or what to do for it?
"We can't beat this disease, YET, but we can't let it beat us!"

"Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." Matthew 6:34

Regular Member

Date Joined Aug 2007
Total Posts : 37
   Posted 5/12/2008 8:57 AM (GMT -7)   
This isn't an answer but a question about 6mp. When you first went on it, dd you have a hard time adjusting to it?

Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 5/12/2008 9:06 AM (GMT -7)   
I really can't help you but to tell you about my experience.  When I first started 6-MP my doctor slowly upped my dose.  When I got to the top dose I started developing mouth sores.  Got so bad that I couldn't eat or drink anything other than ice water in slow sips.  I would wake up with my lips glued shut because of the oozing.  After trying several medications with no relief I ended up in the ER.  Turns out I had bone-marrow suppression.  Just make sure your doctor keeps an eye on things.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (27) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

Regular Member

Date Joined Aug 2007
Total Posts : 37
   Posted 5/12/2008 9:15 AM (GMT -7)   
Thank you so much. 

Veteran Member

Date Joined Dec 2006
Total Posts : 559
   Posted 5/12/2008 4:10 PM (GMT -7)   
I can't tell you much about 6mp, but leg cramps - I have lots of experience!

Someone suggested on this board many months ago that this was a likely sign of potassium shortage. That made me delve into some research on potassium, and I concluded I needed more in my diet. A lot more. I did that, and solved the problem.

The big question is how to get more potassium in your diet. Bananas and potatoes are known to contain a fair bit, though perhaps not enough if you're really deficient. After some research, I concluded that potassium pills are NOT a good idea - can damage the stomach, and the actual amount of potassium in each pill is very little - you'd need about 50 a day.

The solution - you can buy very cheap potassium chloride at most supermarkets in the section that sells salt. It's sold with a name like "No Salt" or "Salt Substitute". Look at the label and make sure it's 100% potassium chloride (chemical formula KCl).

Don't take it straight. Dissolve about 1/4 to 1/2 teaspoon in one to two cups (or more) of water. You could drink that straight, but it tastes awful. Flavor it with something like Tang, lemonade powder or Crystal Light. It should taste something like Gatorade when you're done, but it will contain a lot more potassium than Gatorade. An adult can take up to 3 grams (3000 mg) of potassium chloride a day, but half that should be plenty. The important thing to remember is to get plenty of water with the potassium - it has to be fully dissolved or you risk stomach damage.

I have found that not only have my cramps disappeared, but I feel in better health overall.
Crohn's since 1988
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