Hi guys, thanks a mil for all the replies. I know my problem is not a major one in the big scheme of things and compared to others on this forum.
Well i actually did quite well after my first surgery 9 yrs ago. My GI did not have me on any meds except Questran which i prob have to take for the rest of my life. I don't know whether the idea of no meds was good one. I believe that i should have been on some sort of med as a preventative means.
As for quality of life - my quality of life is quite good, as in i am managing to hold down a full time job and i try not to let the tiredness stop me from doing things i enjoy. My main problems are that eating is no longer a pleasure, every mouthful i eat causes discomfort, bloating (looking 5/6 mths pregnant), distention and tiredness. My BMs are not a major issue although they vary from day to day between D & C and quite often i get what feels like a really bad tummy bug maybe once a month or so. This can last from 2 - 5 days at a time.
According to my GI there is no active inflammation, and he's almost positive my problems are all due to scar tissue. But i reckon the scar tissue is quite bad as i can even feel the bubbles of gas trying to get through my intestines and the fact that no matter what i eat i have constant and severe bloating which i have to say is the worst part. It's the discomfort i feel everyday that's really getting me down. Even though i'm quite slim naturally, after i eat - I feel like a whale sitting at my desk and sometimes just want to stick a pin in my tummy and see what happens!!!
Ingrid Norway - i have heard alot about
LDN but i'm not sure what to think. It sounds great but would it be of any benefit if the main problem is scar tissue and not inflammation?
Regorlaup - sounds like we are in the same boat and our crohn's is in the same area also. I am also very interested in hearing abour Remicade and people's opinion on this treatment as my GP has suggested it a few times but again - not sure if it would be a success for scar tissue alone.
As i said, my quality of life is not all that bad but the symtoms i have are really starting to become quite a negative impact on my life and it seems that the symptoms are getting worse every day. I am seeing my GI tomorrow - i'n having another colonoscopy where he will see if a balloon dilatation is possible. I pray he can do this and that it will be of some benefit. If not i need to seriously consider the whole surgery option, even if i am against it.
Thanks again for all your posts.