Hi all, just need to vent to people who understand. I am 27 yrs old and I can deal with the Crohn's, IBS, reflux/gastritis, endometriosis,thyroid disease, elevated liver enzymes that require a lot of tests and arthritis (well, the arthritis really makes me the maddest) that I was blessed with. But, I'm getting a little overwhelmed this week.
1) I went to my Cimzia clinical trial appt Monday and was told the trial will be ending in 2 weeks, now that the drug is FDA approved, but I can buy it through the drug company, so I signed some papers. This is after being told 2 wks before that the trial would continue to monitor the long-term effects. Still, no big deal, other than it may be outrageously expensive.
2) So, the next day, I saw my GI and he decided the Cimzia wouldn't be worth the price since I'm still having a lot of arthritis and he doesn't want me taking arthritis meds or NSAIDs anymore, since I have 3 ulcers right now. Wants to try Humira instead, as long as rheumy approved. Called rheumy and that's fine, just waiting to see if insurance approves and if the doctor's office is even working on it. I'm worried about having a long gap between the two and feeling even worse that I already do. I'm 27...I should not feel like I am 87. But, we'll have to deal with it and wait for the Humira.
3)So today I saw my thryoid doctor. Just expected the usual, "labs look good, here's a new prescription." No, there is a "thing" in my neck that she has been watching that has gotten bigger. Not a goiter, just a "thing." She says I need to come back and have what is similar but less invasive than a biopsy. She will send the results to a specialist who will determine if it "needs to go" and, if so, she'll "just cut it out." She said it like it was no big deal. And, she can't see me for 2 months, meaning I get to worry about having a tumor or something in my neck for a while.
So, that is what has pushed me over the edge today. Too much unknown right now and too many things to worry about. Sorry for the long post, thanks for listening (or reading). =)
...rejoice in our sufferings, because we know that suffering produces perseverence; perseverence, character; and character, hope. Romans 5:3-4