All of BitBit's suggestions are valuable for a newly diagnosed crohnie... but with an opportunity like this...
The questions that I would attempt to articulate would revolve first and foremost, around systemic treatments vs. symptomatic treatments ... by that I mean tactics that provide for "whole body health" rather than just patch up a particular part of your intestine...
Almost every person on here has a daily cocktail of nonsense that we swallow, inject or otherwise get into our bodies as best we can. Most of us, myself included, aren't even sure which pill is supposed to do what anymore. Unlike many other diseases though, sometimes the relief provided by these cocktails is barely noticeable. Our doctors make sure that we understand from the start that there is no cure. Every one on this board will probably agree that at one point or another (if not ALL the time) our doctors are completely making it up as they go along. Why, then, does it seem like doctors are more content to treat each ache and pain individually than to research and treat the entire body? Why aren't there studies being done (and if there are, where are they and how can we help?)... to find out links between our sleeping habits and flare-ups, between our state of anxiety and the perpetual viscous circle that so many of us fall into (where we get so worried about
what our gut will do that we CAUSE it to do poorly based on our own worry...). And for pete's sake, are they even still researching what causes this stupid disease to begin with? I mean, I know there is the MAP bacteria theory, and a host of others, but I mean really... is there honest research going on? If we knew what triggered this disease, maybe we could better combat it, and if nothing else, at least keep our kids from getting it! But it seems like there is a medical preoccupation with money, because the vast majority of research is being done on "patches"... on drugs that might, or might not, make our symptoms less bothersome, but that I can guarantee you will be very expensive. I'm tired of patches. I am, along with many many other crohnies, seriously considering abandoning the field of medicine. Heck, at this point, I'm starting to think that swallowing a bucket of hookworms doesn't sound so bad if it would help me without hurting me (a previous discussion thread here on the crohn's board).
Maybe some people are content bouncing from doctor to doctor, and from pill to pill, for thirty years or more with this stupid disease. Maybe, until now, that's the only option we thought we had. But it seems to me, this shift - this shift toward a whole-body-health approach is also a "screw you" to the medical field. I don't think that we WANT to lose faith in the medical field, but in general - I don't think that you could find a more medically-jaded group of people than you'll find among us crohnies. Just from being on this forum for the last few years I have noticed a subtle shift... not away from medicine necessarily, but towards whole body health. While most of us cannot afford the "Garden of LIfe" approach, is there research to back up that general concept? Is there any research being done on every-day ingredients and chemicals and the effect that they have on our bodies?
I hope that somewhere in the above rant is an ounce of something that will help you articulate that which I cannot.
Best of luck to you on your article, and thank you for taking the time to ask.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered.
"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."