THanks to all
Although the sores are not Bacterial for some reason the IV antibiotics and methotrexate does help them or at least tries to
Basically it is like your blood is BOILING and they will pop out at the "sensitive " areas at the time IMHO and for me at least
They start as lil pustules and grow ......there have been times where I have been able to LITERALLY watch them grow...
I have never had them on trunk of body ........just on legs hands fingers arms and face........
There is BULLOUS Pyoderma and Pyoderma
MY old doc yrs ago had me on IV Vancomycin for months at a time and I have lost my hearing in one ear losing it in other......
The Ear ( Hearing specialist and doc ) have both agreed and written depositions as per the effect it could have had used that long
Vancomycin is a great Antibiotic but def not for long term IV use........
I am in a lawsuit with this as I type and have beeen for a couple of yrs now
I have scars that are unbelievable and they are there for life
Nothing will take them away and believe me I tried everything
I get more sores when I have a few or start with one from stress .....anxiety or a CD flare and I also believe envioronment plays a big part in my outbreaks.this was the first Christmas in 14 yrs I had not had an outbreak ..we moved from Bothwell ( oil town) to Strathroy Ontario and I ahve done so well here .......
I have even got an outbreak and a really bad one after a colonscopy and endoscopy..doc said it was trauma to the body..makes sense
I am Native Canadian and I am dark of course but the scars are lighter (and have some almost purple) than my normal skin color after they are healed for a long time
Yes for me I have found that the sores will re
open at the same site in some outbreaks.........not all
Sometimes I believe it is from Trauma and other times I think it is where my skin is more vulnerable at the time
I am so sorry you have to deal with this too
That makes about
6 now here that I know of ..........
Email if you want to ......
I have done so much research as has my family doc on this .....be glad to share
It took 9 yrs for me to be DX ..........I was only with new doc for a month and had DX
I do hope that this will help someone I really do ........
That is what this site is all about
right......sharing ,caring and support.........
Take care Amber
Thoughts and prayers are with you ...
BEV...thanks for your caring and support.it means alot to me ........LYN
DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
Donate at www.healingwell.com
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
FIGHT the FIGHT with all YOU HAVE