Posted 5/15/2008 6:08 PM (GMT -6)
As you guys know, my husband has nervous system disorders which is probably associated with the remicade. He's on 80mgs of pred and the remicade, and his next infusion is due May 22nd. However, we're fairly certain given the seriousness of the nervous system disorders (possible MS triggering), that we're not going to get the next infusion, and we're going to stay away from biologics altogether. So, the plan right now, is to ask the neurologist to do an MRI (to see if there's any lesions on the brain), and to ask the GI to put my husband on Imuran or 6-MP, and continue the prednisone at the same dosage for a while longer, until he hits remission with Imuran/6-MP and Pred, while tracking the neurologial symptoms and hoping for a complete recovery.
The steroids didn't do a thing when my husband was in the hospital (even at 120mgs of methylprednisone on IV). It was the remicade that helped my husband get home. He now has 2-3 mushy stools a day and is putting on weight. I know he's on in remission yet, and probably has some inflammation inside. I am worried that even with Imuran/6-MP and being on Prednisone at a high dose of 80mgs, he'll slide back into the pain, cramping and diarrhea. Here's my question - does the SCD stand a chance of helping prevent that backward slide?
In your honest opinion, can the SCD help my husband stabilize and continue to improve without the Remicade, and eventually taper off steroids, and stay on 6-MP/Imuran long-term? We're willing to follow the SCD strictly with no illegals, no matter how much work it maybe. My other concern is whether I can provide my husband enough calories on the SCD. He is allergic to nuts, so I can't bake him any almond flour stuff. So, pretty much, he has to get his calories from the yogurt, cheese, and meats, and maybe peanut butter and jello. I intend to start him on the diet next week. Any encouraging stories about the SCD?
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff
Home now after being in hospital for 45 days
Canasa, Lialda, Vancomycin, Flagyl, Colestipol, Pred 80 mgs, Remicade (3rd infusion due 5/22/08), VSL#3, FloraStor
Still having problems, hoping for a remicade miracle
Need to get off the pred ASAP