Okay, you guys just won't believe this stuff. I see my GI today. First time since all this flare started, with the lip/hand/foot swelling and D of course. Now I will say, I've never really liked this man. He's always seemed wishy washy, but it's the only place my insurance will cover, and they give you major crap about
switching doctors within the office.
First he says he never saw anything on my scope TWO years ago. The scope he did to go in and fix a gushing ucler in my TI. Basically he undiagnosed me, right then and there. I was like WAIT a minute??? You said you found ulcers and the biopsy's showed Crohn's disease of the TI. Then the next minute he said I had UC. WHAT?? Then he started saying Crohn's again. He kept flip flopping all within 10 minutes. I was like "Well why exactly have I been on Asacol for the past TWO years, if you never found anything wrong me?" No answer (stares at computer screen).
Then he asks me what my Primary doctor thought was going on with me. I said uh he says I'm flaring, and believes all my swelling is a flare as well. He says "Well I've heard of joint problems with Crohn's (again I have Crohn's, good to know UGH). But never anything in the mouth or lip. I had to tell him what my primary said and what so many here said "From the mouth to the anus right?" Well that's technically true, but I've never seen it. Guess since he's never seen it, it don't happen? Then he starts asking about my history. When did I start having Crohn's symptoms (again saying now I have something). When did I have my fistula sugery, my gallbladder out ect... This is a man I've seen for TWO years. NOW you are asking me such questions???
So then he wants a scope, you know that's fine, if your actually going to use it for something. Then he wants me to see an arthritis specialist, which is also okay. Since he obviously doesn't know what he's talking about.
THEN, he wants me to start tapering the Prednisone. I'm on 40mg right now. He wants me to taper every 3 days, 10 mg less. Isn't that too much? He want me at 20 mg within a week. Then to stay at 20 mg until after I get back from vacation in a few weeks. He gave me two months worth of Pred. But I have no idea if I should follow such a fast taper, ESPECIALLY since I'm still having 5 loose stools a day still. I'm not well yet! Oh but he said to call him if I start to flare up while tapering. Flare up from what, if I don't have anything wrong with me?? Dope!
So basically I'm going to get back in touch with my family doctor, who seems to know a heck of a lot more then my so called specialist. See what he says about the tapering, and I'm obviously going to have to fight that office to get in to see someone else. I need someone who knows what the heck they are doing to help me. This man is just a complete quack! I'm in such shock over that visit, I don't know what to think!
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.