Remicade & Crohn's

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Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 5/15/2008 5:17 PM (GMT -7)   

Before starting Remicade, make sure that you know about this drug and what can possible happen to you.  Also while on Remicade, make sure that you continue to follow through with your GI and doc regularly. 

 

I am not posting to stop every one from taking Remicade but to say that I am one of the unlucky ones that has ended up with complications due to this drug.  I just learnt that I have stage one lymphoma's.  So you could say that I am kind of angry.  The results of my last gastroscopy, colonoscopy and barium follow through were never forwarded to my new GI. 

 

The only reason he now knows is because I have been slotted for a stem cell transplant and I needed to get all of my tests that had been completed since I contacted the university doing the study.  If I hadn't of had to do this I may have been placed on Remicade which could have created even more complications for me. 

Shoshanna

Post Edited (Shoshanna) : 5/15/2008 6:24:45 PM (GMT-6)


Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 349
   Posted 5/15/2008 6:01 PM (GMT -7)   
Im sorry to hear that. The one thing that has always confused me was lymphoma, what is the treatment and prgnosis for it?
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (23 years old 180lbs). Off predisone and on tysabri 4/3/2008
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wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 5/18/2008 12:52 PM (GMT -7)   
Shoshanna, I am so sorry to hear that!  I just started taking Remicade a couple weeks ago.  How did this happen to you?
 
God bless.

nursetiff
Regular Member


Date Joined Jul 2007
Total Posts : 33
   Posted 5/18/2008 3:38 PM (GMT -7)   
what other meds were you on while you were taking remicade???
diagnosed with Crohn's 2/2007. Small bowel resection 4/2007 d/t abcess, perforation.
Currently on Remicade, Pentasa 1000mg 3xday.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 5/19/2008 9:40 PM (GMT -7)   
Shoshanna, sorry to hear about the lymphoma. Hopes and prayers that all turns out ok for you. Where you on remicade or was it to be an option??
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

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