I am blessed...

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Veteran Member

Date Joined Apr 2004
Total Posts : 992
   Posted 5/16/2008 9:51 AM (GMT -7)   
I haven't been around for awhile but I still think of you guys often. This DD can do so much damage in so many ways I can only stand by the saying "what doesn't kill us makes us stronger." This has been one hell of a ride.
I just want to offer a little hope to everyone. As bad as things were for me ( those of you who went thru it with me I'm sure remember) Life is sooooo much better. I am med free and have been for over a year. Went from 36 pills a day to 0. I did the cade, the humira the roids and all the other crohnie meds. Since off the pred I was even able to get rid of the BP meds.
I am still tossing around the idea of having my colostomy reversed. The surgeon thinks I'm foolish to even think about it. But he isn't the one living with it either. After 28 years of marriage I am "dating" and I gotta tell you, the "I have a colostomy" conversation is a killer!
I am a grandma now! It's a boy and he is very handsome!
I wish you all the best!

Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!

Regular Member

Date Joined Oct 2007
Total Posts : 390
   Posted 5/16/2008 9:54 AM (GMT -7)   
That is wonderful!  What did you change to get off your meds?

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/16/2008 10:41 AM (GMT -7)   
Cindy be really careful with being med free. I did that and didn't realize that the Crohns was still in there ticking away and ended up with an emergency resection. I personally only take Asacol to help me maintain my remission. But I am glad to hear you are doing well.

And congrats on the new grandson!!! I have 5 grandbabies and I just love them all to death.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 5/16/2008 10:44 AM (GMT -7)   

Cleo-I did reverse my ileo, only to have a new one a few months later. 

A couples points might be:  1)if you are dating someone and want to tell them, great, but they don't have to know unless you want them to know 2)if they are worthy of you, they will understand that it gives you a QUALITY of life (one without meds/pains etc) 3)wouldn't being able to spend time, real quality time, with your grandson trump a reveral? (no guarantees things will be good) 4)meds!

If I understand colostomies, you do have a few more options than I do with an ileo.  Have you tried irrigation and using a cap?  I know I wish I could!!

I know life with a stoma has its challenges, but at least for me, it is worth it!!  I hope that your decision goes well...Best of luck!

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 5/16/2008 1:34 PM (GMT -7)   

Just had to drop in to tell you congratulations on keeping the faith and fighting your way through your challenges.

I am so happy for you.



Kitt, Moderator: Anxiety ~ Panic 
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

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