I had Crohn's in my rectum and descending colon for 7 years and had fissures, fistulas, skin tags, and abscesses, so I know what you're going through, and I'm sorry.
Even though I was going to the bathroom 20+ times a day during a flare, I did everything to save my colon and avoid surgery (Remicade, oral and rectal medicines, vegan diet, natural supplements, etc.), but nothing worked for me. I ended up having surgery to save my life.
I had a proctocolectomy, which is the removal of the large intestine and rectum, and a permanent ileostomy. I saw my gastroenterologist after surgery and was expecting her to prescribe some maintenance medicine for me, but she said that since I never had Crohn's in my small intestine, it will probably never show up there, so there's no need to take medicine, since there's no disease to treat.
That was two years ago, and I've been disease-free and medicine-free ever since. I haven't felt this good in years! I have no pain anymore and never need to be near a bathroom. I eat whatever I want, exercise, work full time, and go swimming at the beach on weekends.
The appliances are waterproof and only need to be changed once a week, and that only takes about
a minute to do. The bags have velcro closures at the bottom, so all you do is un-velcro the end and empty into the toilet. The pouch is flat against your stomach, so nobody can tell you have one. I just started a new job a month ago, and nobody there knows that I have one.
My husband, family, and friends have been very supportive, and they're all happy that I'm not sick anymore. Nobody could be happier than me. I love having my life back.
I know it's a really difficult decision to make, but aren't we fortunate that there's an option out there that can lead to a life without pain and disease.
Wishing you good health,
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)