Post Edited (Shoshanna) : 6/1/2008 5:01:04 AM (GMT-6)
shoshanna, really sad to hear about that since I'm on the verge of transitioning from Pentassa and Entocort to Remicade Infusion as recommended by my GI's. I really have very serious reservations due to the possible side effects; however, I do not want to go against doctor's recomendations. I have only been diagnosed with Crohns since 8/2007 when I was hospitalized for a week with distension and severe pain of the lower right abdomen. I really have no idea exactly how Crohns affects people!! I do not have the symptoms I have seen such as weight loss, diahrea, pain when eating, etc... I am almost in the belief that I am in denial that I even have Crohns even though all testing and two doctors have said otherwise. What actually are the symptoms? How badly should I be feeling? What in the world is a tag or fistula? Yes, I feel fatigued and have occasional diahrea, I also have night sweats, swelling of joints and feet, and most definitely have had a change in appetite. Personnaly, would you recommend the use of Remicade, or, would you consider surgery as the better option?
Wishing you well,
Thank you, Gail.
Good health to ya,
I am so sorry that you had to discover your serious diagnosis on your own. Frankly, those who withheld the information from you are either cruel or incompetent.
There is a member here, Mike f, that had a resection. The pathology of the resection revealed that he had lymphoma. I believe that his was determined to be Hodgkin's but don't take that as gospel. He had been on Remicade for sometime prior to this discovery. One year following his last chemo he is cancer free. I know that Hodgkin's is different that non-Hodgkin's, but it does show hope.
Mike f doesn't stop by HW often anymore. He does have a blog that you can read. It details the discovery of his cancer and the treatment. http://www.mfischer.com/topics/cancer/
Please keep us updated. Know that we are here to listen/read to any outpourings. Bless you.