low dose naltrexone

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New Member

Date Joined May 2008
Total Posts : 8
   Posted 5/17/2008 9:57 AM (GMT -7)   
 You can search low dose naltrexone. The studies are being done at Hershey Medical Center. Some of the phase 2 studies have been published. I am working on a Saturday and my printed material is at home but will post later. Dr. Ian Zagon and Dr. Jill Smith are doing the studies. Can get their email from the ldn website
**PLEASE email me about the editing I did on your post.....thanks so much .....LYN.

Post Edited By Moderator (Howlyncat) : 5/18/2008 1:42:31 PM (GMT-6)

Veteran Member

Date Joined Aug 2007
Total Posts : 990
   Posted 5/17/2008 10:19 AM (GMT -7)   
Thank you CAMEID, and welcome! It's nice to have someone with your insight on board!

We have had many a discussion here about LDN and a few members are currently on it. Maybe they will jump in and share their stories! It's sure good to hear from someone who is dispensing it and knows first hand of its success!! Word is ever so slowly getting out that LDN may be the best thing since sliced bread for Crohn's. Maybe this thread will bring a few more over to LDN.

Do you yourself have CD, or just here to help everyone?

Thanks again, and welcome again!
Mother to 16 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September. Gradually learning/using more SCD recipes, too! (cooking challenged)

Veteran Member

Date Joined Nov 2007
Total Posts : 4384
   Posted 5/17/2008 2:18 PM (GMT -7)   
Where is a good website to read about LDN?
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 8 250mg pills per day, Cipro 1 week/month, Metamucil, probiotics

Veteran Member

Date Joined May 2007
Total Posts : 1284
   Posted 5/17/2008 3:39 PM (GMT -7)   
Lot of ancedotal evidence... *But ancedotal evidence usually isn't very reliable* It does look promising, though... and official research studies are being done on it... I don't think I'm going to try it, though, until it has been proven to be beneficial... *Because at this point, they're not really sure long-term wise and whatnot, if it's helpful, harmful, or has no effect at all...* There's also the possibility that it could cause muscle stiffness... Small side effect... but I suppose if you have arthiritis, that's something you could do without...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

Regular Member

Date Joined Oct 2007
Total Posts : 61
   Posted 5/18/2008 7:03 AM (GMT -7)   
wow! This has given me something to think about. I'm bi-polar & the steroids are giving me a really hard time, my flare is only a mini one, & healing with the entocorte, but with bad side effects! Bad! I see the doc on Fri.....I'll have to ask him about this...thanks!
 Diagnosed with proctitis/colitis/crohn's this year(2008)

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 5/18/2008 10:53 AM (GMT -7)   
ok, so if Tysabri doesn't start kicking the Crohn's out the door, I am going to try LDN before surgery. I have an appointment next Friday with my old doc and will see if he'd be willing to run with it. My current doc just says it's interesting and doesn't seem willing to work with me. So... with regard to Vicodin. I take 2 per day. I don't think I am addicted -- meaning I think I could just stop without withdrawal.

And, I am only on 2mg methylpred. I could stop that at any time. (and likely will next week.)

So, I guess 4 weeks from my last Tysabri infusion I could try the LDN? (Unless it works then I'd have another infusion, but... so far it's been not so great.)
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl

Regular Member

Date Joined Mar 2006
Total Posts : 34
   Posted 5/19/2008 4:35 PM (GMT -7)   

I've been on LDN for a year. It put me back in remission after a year of ups and downs. about 2-3 weeks after taking it I was about 80% better. Then I started a gluten-free diet, and was 100% better. I am grateful for it.

I occasionally have an unexpected or loose BM, but true diarrhea has been very rare for me since LDN. Well of course tonight I had the first watery stool in a year so I'm freaking. Hopefully it's just stress-related and not a true flare, because I would hate to see teh LDN effect end.

Anyway, i encourage people to learn about it, and consider it.

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