so I have too much B12 now??????

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Veteran Member

Date Joined Jan 2006
Total Posts : 3143
   Posted 5/21/2008 5:23 AM (GMT -7)   
OK my B12 dropped so seriously low that I was put on every two weeks.  Supermarket pharmacist questioned this as too much and wouldnt fill the Rx until doc signed off.  Now the GI is telling me I have  enough B12 for a year and don't need the shots.  Oh and he said that the fact that I felt better when doing them every 2 weeks was a placebo effect (hmmm placebo effect can stop my lips from numbing up and my hands from tingling!)
Only thing this GI wants to hear from me is "start me on reimcade".  Anything else he brushes off.  To quote him..."there are no new treatments coming that are any different than the humira and remicade"  Not that I am researching them, but what about LDN, stem cells etc.  I guess he doesn't believe in those
This is the second time a doc has gone to drastic steps to get me into more B12 then turned around to say stop taking it completely.  That just does not seem right.  I am so glad I have a CCFA meeting tonight.  I am going to get a new doc name if I have to corner someone ni the restroom to get it :-)
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Veteran Member

Date Joined Aug 2007
Total Posts : 990
   Posted 5/21/2008 5:43 AM (GMT -7)   
I am no expert, but isn't B12 considered on of the water-soluble vitamins that leaves our systems rather quickly? Enough for the rest of the year?!?! I assume your GI did bloodwork to determine you don't need shots for the rest of the year?

In the mean time, why not pick up a sub-lingual B12? If you do, recent research says to take sub-lingual in the methylcobalamin form rather than cyanocobalamin (better absorbed/utilized). I found I had to look a little harder for it, but I did find it at my local health food store.

Good luck at your meeting the restroom, or wherever!
Mother to 16 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September. Gradually learning/using more SCD recipes, too! (cooking challenged)

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 5/21/2008 6:14 AM (GMT -7)   
Never heard of such a thing. I'm about to start a run of daily B12 shots. I was already taking them, like you bi-weekly,
but bloods still showed very low counts. Had he checked your levels, before he made that statement? Or did he go on
just his perception of you. If it was the latter, I would consider changing your GI....

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/21/2008 6:26 AM (GMT -7)   

Hey Habs,

How close was the time between your last B12 shot and the blood draw to test your B12?  If you got your B12 shot a few days before your blood test that could give you high B12 results.  I just had that happen to me.  I was going in to have some bloods ran that my GI requested and there happened to be a B12 blood test in there from family doc that I didn't even know they were drawing.  I get my results online and saw the B12 and it was high.  My GI didn't even blink at it, as he said you could get high results from even taking the oral B12.  I get my shots every other week also, and I too notice when I go longer than 2 weeks between shots.  And its not a placebo effect either, it helps immensely. Sorry you are having such difficulties.

Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Jul 2005
Total Posts : 141
   Posted 5/21/2008 8:54 AM (GMT -7)   

Last time my levels got near normal & I questioned the frequency of injections, my doctor said "well if you don't need it, you'll just pee it out anyway".  That's a direct quote :) 

Good luck on the new dr!

Crohn's Colitis - officially diagnosed Feb. 2005
(Asacol, Imuran, Folic Acid, Iron, B12 shots)
Interstitial Cystitis - 2002
Raynauds - 2005
.::I can do all things through Christ who strengthens me. Phillipians 4:13::.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 5/21/2008 10:33 AM (GMT -7)   
Increased vitamin B12 levels are uncommon. Usually excess vitamin B12 is removed in the urine. But disorders that affect the levels of vitamin B12 in the blood can lead to too much vitamin B12. These disorders include:
Liver disease (such as cirrhosis or hepatitis)
Myeloproliferative disorders (for example, myelocytic leukemia)

There is a very low toxicity related to taking too much B12, it's more than likey that taking too much will not cause any harm, but like stated above, if you have another disorder going on (you may not be aware of) then you best get to a good doc to help you figure out what if anything eles might be causing you issues.

It's important to take enough vitamin B12 daily for those who have low levels (I started with shots and was weaned onto 1200mcg tabs and this has worked well for me).
From my experiance and understanding, tingling/numbness is due to lack of B12, not too much B12, it's the onset of permanant nerve damage which is why B12 is required in order to reverse the oncomming damage.


My bum is broken....there's a big crack down the middle of it!  LOL  :)

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