OK my B12 dropped so seriously low that I was put on every two weeks. Supermarket pharmacist questioned this as too much and wouldnt fill the Rx until doc signed off. Now the GI is telling me I have enough B12 for a year and don't need the shots. Oh and he said that the fact that I felt better when doing them every 2 weeks was a placebo effect (hmmm placebo effect can stop my lips from numbing up and my hands from tingling!)
Only thing this GI wants to hear from me is "start me on reimcade". Anything else he brushes off. To quote him..."there are no new treatments coming that are any different than the humira and remicade" Not that I am researching them, but what about LDN, stem cells etc. I guess he doesn't believe in those
This is the second time a doc has gone to drastic steps to get me into more B12 then turned around to say stop taking it completely. That just does not seem right. I am so glad I have a CCFA meeting tonight. I am going to get a new doc name if I have to corner someone ni the restroom to get it
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....