I was diagnosed with CD in January, after a colonoscopy showed an inflamed ileum typical for CD. The colonoscopy showed no damage to the colon, just the ileum. I also had a "small bowel series", drinking the dreaded barium. No obstructions or ulcerations could be seen. The upper endoscopy didn't show anything either. But I still have pains in what feels like the "stomach" or perhaps the small intestine. Cramping and stabbing pains. My GI tried to get pre approval for a capsule endoscopy, but the insurance company wouldn't give it, saying it is "experimental" for anything except a certain situation, I forget what, it doesn't apply to me. Their line was, "you don't need it to diagnose Crohn's, we'll accept your diagnosis of Crohn's". He said it's not even worth appealing, they never approve it anyway.
Should I pay the $1200 myself for the test? Could it find something that the SBS didn't?
GI only gave me 5ASA. He said if that doesn't work, he'll put me on something more systemic, which I prefer not to have, because of the side effects. From what I understand, 5ASA only works on the ileum anyway. Or is that wrong?
In the meantime, I am taking fish oil and other anti inflammatory herbs and vitamins. I just want to be sure I'm not ignoring something that should be taken care of. inflammation of the small intestine is associated with increased risk of lymphoma.