Crohn's & Fibromyalgia

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Regular Member

Date Joined Apr 2004
Total Posts : 407
   Posted 5/27/2008 9:24 AM (GMT -7)   
I have been noticing that several of us also have fibro added to our Dx's just how many is there of us???
and do you also have IBS from the fribro on top of the crohns? I do anxeity and nerves will bring on fibro IBS and problems. which if not carefull will lead to full blown crohn's flare from the irritation.
I swear I get up set and my liver dumps gall into small intestines (no gall bladder) and I'm cleaned out.... don't need no prep! I can plan on being in bathroom or real close by, till the yellow green gall comes thru, then I know it's ok to move - by then I just want to go to bed!
 May God Bless and keep you in his care.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 5/27/2008 9:37 AM (GMT -7)   


I am part of the Fibro and CD Club. I do see more symptoms when stressed but I bet Doctors would argue that Stress does not make CD worse. I do not have IBS though.

I have noticed over the years if I have an argument with DH then I have to run to the potty the stress makes me have diarrhea. Also a terrible boss I had recently make my CD flare when she yelled. My stomach would ache etc...



Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for Hital hernia and other issues  Might be having surgery soon to correct hernia.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/27/2008 9:56 AM (GMT -7)   
Yes I have fibro too. But just like Karendee if I get stressed I will get sick. I take Xanax for my anxiety and if I take right away, it will virtually stop it all. Still have the Fibro pain, which my pain meds take care of. No IBS for me, I even just asked my Gi about that this past month. He says I just have mechanical probs from my resections.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Apr 2004
Total Posts : 407
   Posted 5/27/2008 10:56 AM (GMT -7)   
Karen & Nanners, it was my new rhemy that pointed it out to me, he said was a aspect of the fibro. I know my crohns is in remission - the last colonoscopy in dec 07, showed no activity except for divertiliculosis? and the last one i had showed the same, but then with in the week of the colonoscopy I have the clean out problems ofter getting up set - if I stay upset the IBS stays too, but once nerves is under control IBS stops. I also take zanax for anxiety every night and then extra time release during "flares". It's crazy tring to figure out what is causeing what when.....
I had asked about the fibro since I had so many of the signs of for so long but Dr.'s did not believe, till now and he is very up with it. and the discussion was very interesting and yes with out a doubt I was also dealing with fibro.
 May God Bless and keep you in his care.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 5/27/2008 2:06 PM (GMT -7)   
Could some of you give a list of your fibro symnptoms? I had IBS before CD and although bowels are doing good. I have alot of body discomfort and so tired cain't get myself to do much lately. lol gail

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 5/28/2008 4:03 AM (GMT -7)   
You can add me to the list as well
I have severe pain in legs and also in my hands as well
Especially with weather changes and also am exhausted ALL the time
I do not sleep properly at night ...broken up patterns

I am just recently DX so I am just finding my way around this and learning what not to do and what to do

Sorry you all have this as well as CD

The Fibro forum is great
The "Letter From Fibro " and the "Spoon Theory"
Have really helped me and my hubby n daughter
I printed them out and have them in frames and took them to my FD as well

Take care

  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                               FIGHT the FIGHT with all YOU HAVE

Regular Member

Date Joined Jan 2006
Total Posts : 29
   Posted 5/28/2008 10:34 AM (GMT -7)   
I am another with both CD and Fibro.  I don't know if I have IBS because I am not sure that its symptoms would be any different from the D I get with the CD....


I'm allergic to myself, I have Crohns and FMS.

(misdiagnosed for RA in 1984)
DX'd with Fibromyalgia 1998
DX'd with Crohns 2000

RX:  Asacol, 6MP, probiotics, Folic Acid, B12, Flexeril, Tramadol, cranberry supplements, Ambien

No surgery yet!

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 5/28/2008 12:11 PM (GMT -7)   
Once you get one autoimmune disorder, your chances are greatly raised for developing a second & even third. If you note: there have been many discussions lately here about multiple disorders. I have regular arthritis on top of my Crohn's which causes its own form of arthritis.
I'm currently reading ( a quite disturbing!) book about enviromental contaminants & our disorders. Seems there is a link here...


Regular Member

Date Joined Apr 2004
Total Posts : 407
   Posted 5/28/2008 12:13 PM (GMT -7)   
whats the book Matthew???
 May God Bless and keep you in his care.

Regular Member

Date Joined Oct 2007
Total Posts : 208
   Posted 5/28/2008 2:09 PM (GMT -7)   
My  GI doctor suggested I may have fibro in addition to Crohn's...I guess there's no way to be absolutely positive about it, though. I just so darned tired!
Pentasa- 1000mg/2x 1/08; Percocet/Ultram for pain; Prilosec 40mg; Xanax-ANXIETY; Cymbalta 60mg
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?

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