Remission for almost 9 years

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New Member

Date Joined Jul 2003
Total Posts : 2
   Posted 5/30/2008 2:23 PM (GMT -7)   
I am in a support group for Crohns in my area. I tell my story all the time in hopes that it will help someone. I had CD so severe I began the paperwork for disability. I was sent to specialists at University hospitals because my local GI could not help... long story short, I become the poster child for remecaid. I was the first patient in this area to receive it. I was scared like hell!!! Back then I only got it once. Few months later again. After a while dr. figure out through studies that 8 week treatment could be sustainable. I been getting these treatments for every 8 weeks for almost 9 years. Once the remecaid kicked in after the first several treatments 6-9 months, I began to feel human again. I was able to exercise again and go back to a normal diet (no liquids all the time) I have had no side effects and even had a baby in between treatments. Yes I received a treatment while pregnant. I had to sign my life away but she is a healthy happy 4 year old. I did keep her stem cells and have it cryogenically frozen just in case I come down with any cancers. It will also help my 3 children and husband if they come down with any of the 1000 cancers and illnesses it covers and heals. I hope this give those of you hope when you see no light at the end of the tunnel. There is!!!! You have to be your own doctor and look out for your own health. yeah

Regular Member

Date Joined Aug 2005
Total Posts : 128
   Posted 5/30/2008 2:47 PM (GMT -7)   
I'm happy to hear your success. Most people who feel well don't post here and it makes it look like everyone with Crohn's is sick all of the time. So there is hope.

I know little about stem cells so can you enligten me on how they would help in cancers. Have they been proven to work? And can anyone take stem cells from someone else?

Veteran Member

Date Joined May 2005
Total Posts : 511
   Posted 5/30/2008 2:59 PM (GMT -7)   
That's awesome that it works so great for you!!! I had a reaction to Remicade that landed me in the hospital so unfortantely I can't take it. But I remember feeling good on it from the 3 treatments I had! (Before my reaction)

But you speak the truth when you say "You have to be your own doctor and look out for your own health". I'm finding that out real fast!!!

Regular Member

Date Joined Apr 2008
Total Posts : 60
   Posted 5/30/2008 3:14 PM (GMT -7)   
That's great! Thanks for your post.  It gave me some hope for the future!

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 5/30/2008 4:09 PM (GMT -7)   
Hi Thanks for your post. Glad to hear you have been healthy so long lol gail
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