Crohn's 4 ever said...
Hi there, I know all about GI's and specialist, my first GI and the one I have now, they were the best. I have had 3 others, and they seem like they must be in it for the money because I see them enough and didnt know me from Adam. I live in Canada and they now limit 2 questions at a time. Very hard to get everything mentioned without sounding like a whiner. I have had crohns approx 30 years, diagnosed 15... if you tell your doctor you are going to get a second opinion, if he cares, he will move to lightening speed to find out what is wrong, if he doesnt go see another one, usually word of mouth helps. This site, really helps because when you think your nuts, everyone else has the same problems, everyone here will help you if they can. Good luck.
I live in Canada too and have to agree to get something done you need to say that you want a second oppion. I am treated by what is supposed to be the best GI that deals with CD. I am not saying that he is bad just that he doesn't listen. Earlier this year I had a resection done and still have problems. I suffer from AS and now osteoarthritis (sp) along with Uveitis. I have been in flare with my osteo for about
a month. I have been seeing a eye specialist for two months now. These are supposed to be precrursors to a CD flare. My GI says that they got it all and that right now I am in remission. The funny thing is some days I feel this way and others I don't. I have taken most of the drugs for CD to include Remicade (was in the testing for the drug). Last week I went to the GP to see about
my cough and she did an x-ray because she thought my asthma (I forgot to add this) was acting up. The x-ray showed a nodule in the lung. Hmmm....have to wonder in a previous gastroscope they found a lymphoplasmacytic in my stomach, which was not related a H. Pylori. I was diagnosed with Gastroitis. My GP doesn't think that it was the right diagnoses. When I saw the Rheume on my last visit I felt like he was pissed because he wanted to put me on Remicade and now can't till they complete the CT Scan and biopsy the nodule.
Any way if you are dealing with the top doc's where do you go? No other doctor will question their diagnoses never mind change anything that have decided to do. I have tried and feel that the pickle hasn't changed just the bumps have moved.
By the way I will add that my doctors are good and great at their jobs. Just that sometimes I feel that they think they are gods and that they are better at understanding this disease than we are. I know that I understand my disease more than they will know and have to remind them that not every patient is the same. Not every flare up is the same.
For me time will tell. Sorry to ramble on.