So far from all these responses, it's making it more clear that's it MY DECISION. My mom has had Crohn's for 15 years and only 2 flares. Hers is in the large intestine, mine in the small intestine. My GI says I was "severely inflamed" and if I stop Remicade or don't take Humira that I'm going to get worse right away. Than he continued to say that all the drugs we have for Crohn's are crap, and that years from now, they'll be calling us "murderers" for the stuff we gave patients. But than he says, "I'll do whatever you decide." lol. wow. It makes me not want to go back to see him.
Wow. Your doctor needs to learn some bedside manners. Since you seem to lack confidence in him -- I'm being too polite aren't I? -- I suggest getting another GI doctor. Although, if you are severely inflamed your doctor, despite his crassness and lack of bedside manner, is probably right. You will likely have problems soon after going off all medication.
As always it is YOUR DECISION. But with bad information you can't be expected to make a good decision. One way you can improve this is to locate a doctor in your area that has the bedside manners you need and is honest. YOu might be able to do this by asking around local IBD support groups. Another way is to speak to your family doctor and explain the situation you have with your current GI doctor. (That's how I got a better one...)
Another way is to see if there are any study medications at a clinic (possibly the one you're currently going to) and see if you can get an appointment with the doctors conducting the study (I know it's a little dishonest if you're not truly interested in being part of the study... but Researchers are brutally honest if nothing else...)
Once in the appointment explain what your issues are with your current doctor. If you're actually interested in participating in the study it's a bonus to boot as if you like the doctor, and he or she communicates on your level, the doctor may actually see you from then on... This will put you very close to up and coming information on new and better ways to treat Crohn's.
This is sort of what happened with me... only I actually felt comfortable with the prior doc and was genuinely interested in being part of the study... Everyone in medicine that I've spoken to speaks highly of my current doc. This includes nurses, GI doctors, Family Practicioners and other specialists. The same can be said for another person who is part of their organization ... However, I didn't see eye to eye with her and almost didn't go to see any doctors there when my GP referred me to the same organization she is at. I'm glad I reconsidered.