A raw food diet...HA!!!! OMG, that dude REALLY doesn't get it, does he Nanners?! That hurts my bowels just thinking about it...
Shoshanna - your story about someone commenting on one of your coworker's bathroom habits flew all over me! I mean, seriously - WHAT KIND OF PERSON has the AUDACITY to ask someone about the number of trips they make to the bathroom and how long they stay in there?! I would be about ready to scratch someone's eyes out who I heard say something like that. You did good firing back at them!
That's yet another reason I don't particularly want to share my disease with the people in my entire building. There once was a female supervisor who was supervising just one man. Not that he had Crohn's (of course, he COULD have and I not known it! ), but this supervisor would keep track of his trips to the bathroom and the amount of time he was gone. She evidently had nothing BETTER to do. She would meet with him weekly and go over her "time sheet" of his bathroom breaks. Within 3 months of him being assigned under her, he had a nervous breakdown and retired early. I felt so bad for him.
Gross story alert! This is a gross story but I'm going to tell it anyway because it still speaks to the reason why I don't particularly want everyone in my office building knowing about my Crohn's...many years ago (long before I knew I had Crohn's), I remember all these people gathered around laughing uncontrollably... maybe 10 or so people? I thought I'd missed out on something BIG so (unfortunately) I asked what was so funny. Turns out they were all laughing about someone else's POOP. Someone had "gone #2" in the woman's bathroom and, well, it was so big it wouldn't flush (I'm sorry! I said this was a gross story!). The janitor told someone she'd never seen anything like it before so that person had to go see it for herself (who in the world would want to look at someone else poo?!?). Well, word of this "monstrosity" just kept spreading throughout the building...even to the warehouse boys in the back who ended up - OMG, get this - taking a PICTURE of it! WHAT IS WRONG WITH THESE PEOPLE?!? This happened probably 10 years ago and people still bring it up on occasion. Even back then, I can remember saying, "You people are sick!" I never found it funny or interesting...just stupid. And I have always felt bad for the person who...well, PRODUCED it...'cause I'm sure the fact that everyone was joking about it got back to her. I don't know who it was and don't CARE to know who it was. If I did, it's the only thing I'd think of every time I saw her! Same with this illness. I don't want office acquaintances thinking of diarrhea every time they see me! Don't get me wrong, I have a sense of humor but I mean, come on! Surely there's a line SOMEWHERE in there...
BrianDK...yep, I totally get where you're coming from. I'm single, too, and hardly have any kind of "single" social life anymore. I go to friends' kid's birthday parties & stuff but I don't have that group of single friends anymore. 6 years ago, I had a group of single girlfriends...but 6 years ago, I started getting sick. I started having to cut out on our plans and eventually it took a toll on my friendship with all of them. At that time, I'd been diagnosed with IBS. When I told one of my friends I couldn't go out one night because my IBS was acting up, she's said, "OMG - suck it up, girl! I've got IBS too - what's the big deal? You go into the bathroom, come back out and get over it!" It was at that time I knew something ELSE must be wrong with me because there's no WAY if she had what I had, she'd say it was no big deal! It's definitely a very isolating disease. When I'm in a flare, I'm often times locked up in my house to be close to the bathroom. I've missed out on lots of things because of this Crohn's and when you don't participate people start to assume you don't WANT to participate, which is SO far from the truth.
I don't wish this disease on anyone...HOWEVER, I VERY often wish that those NON-understanding people could just ONCE deal with something debilitating - just for a week or two - so they can gain some kind of comprehension/understanding/knowledge of what it means to have a chronic illness that changes your every day activities.
Diagnosed in October, 2004 at age 33.
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, One-A-Day multivitamin, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date