I've had some experience with extreme fatigue this year when I got into a major flare starting in January. My fatigue was coming from a couple of things.
First, I had a UTI. I don't have pain when I get UTI's. I'm like 20% of people out there that have extra-bladder symptoms with a UTI which can be fatigue. My arms and shoulders usually feel really heavy, too, and I just feel drained. Well, I got the UTI cleared up but the extreme fatigue/malise was still there.
My doctor did an Iron blood test (TIBC w/ferratin). My iron was very low. Low iron causes extreme fatigue, among other things, like a rapid heartbeat which I was ALSO having. I've been on Iron supplements (Ferrous Sulfate) for over 2 months now. It took about 3 weeks to kick in, but after 3 weeks, I felt my energy shoot back.
I still get tired just from the Crohn's...but since taking the iron supplements, I've felt MUCH better in the "fatigue" respect. So if you haven't had your Iron levels checked lately, you might consider that a possibility of your exhaustion.
Of course, STRESS is also a major factor in exhaustion. Between your hospital stay and remicade infusions, ANYONE would be exhausted.
Hang in there!
Diagnosed in October, 2004 at age 33.
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, One-A-Day multivitamin, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date