Ankylosing Spondylitis question

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Poopington McToot
Regular Member

Date Joined Jul 2005
Total Posts : 315
   Posted 6/5/2008 6:59 AM (GMT -7)   
Hey all,
I know there are some folks here that are being treated for AS.  I have been having some persistent lower back pain for about 3 1/2 weeks now with some additional pain in the hips, knees and shoulders.
This isn't debilitating pain, but it's more annoying and sleep depriving.  My question is for those who have AS, is the pain debilitating or annoying.  I wouldn't say my joints are "stiff" per se, just painful.  I'm having a blood test done for some of the markers for AS as soon as I can get to it.
Could some of the folks with AS respond with some insights?
Thanks as always.
Poopington McToot
It's easy to grin, when your ship comes in...and you've got the stock market beat.  But the man worthwhile, is the man who can smile, when his shorts are too tight in the seat.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/5/2008 7:10 AM (GMT -7)   
Hey Poopington its good to hear from you again, only sorry you are hurting. I have not been diagnosed with AS YET, but I am seeing my Rheumy later this month to talk more about it. I too have alot pain in the same areas.

And mine acts much the same as yours. Its not debilitating, but it sure makes for rough nights and achy achy days. I know I am not much help, just wanted to let you know you are not alone.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 6/5/2008 7:26 AM (GMT -7)   
Like most pain it starts out like you discribe and sneaks up on you. The sooner you start treating it the better.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Regular Member

Date Joined Jul 2004
Total Posts : 92
   Posted 6/5/2008 9:46 AM (GMT -7)   
This website is a wealth of information:
Spondylitis Association of America
Under the General Message Board, check out this "sticky"  topic for 19 pages of posts from folks who have already been diagnosed with one of the spondyloarthropathies or are seeking infomation about their own symptoms.
Spondylitis Symptoms - List Your Symptoms Here
Good luck,

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 6/5/2008 4:27 PM (GMT -7)   
My lower back/sacroileac pain started out as a nagging annoyance. I tried ignoring it for a long, long time. It got so bad that I was unable to sit down. I watched tv standing up, ate standing up, you get the picture. I finally had cortisone injected into my SI joint which worked great. I really had no idea how bad the pain had been until that injection took the pain away.

My lower back is stiff for about 30-45 minutes in the morning after I get out of bed. Then if loosens up and I am good unless I sit down for more then 20-30 minuted. Then my back will stiffen up again. My other joints also loosen up with activity. At times, my pain is much greater during the night because I am not moving about and everything stiffens up. Prior to going on Remicade, my husband would have to physically move me to the edge of the bed to get me out of it.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Regular Member

Date Joined Feb 2008
Total Posts : 91
   Posted 6/5/2008 5:28 PM (GMT -7)   
I like Ides go through the same with my lower back except that I can not move to get out of bed without assistance some days. Also some nights that all I can do is to lay still in one spot and not to move...any movement is so painful. But after getting up in the morning and moving it is better but it returns when my body stays stable.

Also you can have seronegative AS if your HLA-B27 blood test is negative with increased level with your CRP and ESR. So there are times it is hard to diagnose for people with CD.

Good luck.
CD diagnosed 34 years ago
Stem Cell Transplant may be back on
Lap-assisted Ileocolic Resection- February 2008
Ankylosing Spondylitis
Back on Prednisone - I hate it
Ranitidine HCL 
Prednisone 1% (eye drops)
Maxidex  (eye ointment)
Homatropine 5% (eye drops)
B12, Folic Acid, Vitaman D, Calcium

Poopington McToot
Regular Member

Date Joined Jul 2005
Total Posts : 315
   Posted 6/5/2008 6:01 PM (GMT -7)   


That's just the kind of info I was looking for.  I'm definitely not that bad off yet.  I just came in from mowing the lawn and my back feels fine....but tomorrow morning will be a different story.

I would say the pain is predominantly in my back and hips.  Have any of you had any luck with physical therapy or a chiropractor?

Sometimes, life with CD is so wonderful, I just don't know what to do with myself.

Thanks again for the feedback.  This forum is awesome!!

Poopington McToot

It's easy to grin, when your ship comes in...and you've got the stock market beat.  But the man worthwhile, is the man who can smile, when his shorts are too tight in the seat.

Veteran Member

Date Joined Jan 2004
Total Posts : 598
   Posted 6/6/2008 4:46 AM (GMT -7)   
My CD diagnosis started with a sudden episode of RLQ pain 11 years ago (just about this time of year, early June) My gyn told me it was either Crohn's disease or my back. (I laughed at both ideas because both of those areas worked great) They told me that L4-L5 on your spine refers pain to the front groin area Eventually the pain morphed into RLQ and right SI pain. Still thinking it was my back I went to a spinal doctor who is a DO. He did osteopathic manipulations which helped a lot with the back pain. Interestingly it also helped some with the RLQ pain but that did return.

When my problem flared in Jan 07 (by this time I had gi symptoms) when I had surgery I had back pain again . Whether or not this was colon pain referring to the back, or actual back inflammation that you get with CD, I don't know. The back pain has passed now that I no longer have much abdominal pain (since starting pentasa) but I know those manipulations really helped 11 years ago
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica, 10mg prednisone, next???   

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