Well, it wasn't bad actually. It was very informative. I learned alot
and he helped me to understand things that I was having trouble
understanding. He also reassured me that I'm actually with the
best of the best of doctors. (Yeah, he put my doctor over him
even) I had to go way back in the day when I first started with
all this 8 years ago up to today. I told him how my current doctor
can't tell me he's 100% sure I even have Crohn's but that I need to
know 102% if I have Crohn's, because if I don't, then I have been
treated wrong all these years and need to find out what is wrong
with me. He said I may never know 102% that I have it or don't
have it. Its like that with all these autoimmune diseases
unfortantly. They are still researching so much with it down to
how people even get it. He said so I could start going to him and
he said he may never even be able to find out if I do or don't have
Crohn's Disease. They basically base it on your symptoms and
He told me there are 5 doctors in the area, named them
all and what hospitals they work out of, him included. And he said
out of the 5, I'm with the best. He said my doctor is on the Board
of Blah blah blah (All that doctor talk that I wasn't about to try and
understand-lol) and he said that all the new things that come out
with Crohn's disease, my doctor is actually the first one to get all the
info before the rest of them. He said that my doctor is right on with
everything in doing what he's doing. He did bring up a few tests that
I have never heard of or had done, and he suggested that I get them
done. (Small Bowel Exam, CT Scan, and a HLA B-27 Blood test)
While I was sitting there, he dictated a letter to my doctor and told
him that he suggest doing these 3 tests on me. So that was really cool!!!
He also recommended that I stay with him, although he would be
more than happy to take me on. I told him how it was really hard
for me to make this appointment because I do love my doctor, but
explained why I needed a 2nd opinion. He told me to not always
look at a 2nd opinion as a bad thing. He said they can actually really
really help you. He told me to keep in mind that doctors often focus
on one thing and sometimes forget to look outside that box.
So he said by him telling my doctor -"hey do this, this, and this",
it could really turn out to be a super good thing for me. Because
I had never heard of them, I wouldn't know to ask my doctor
"hey can we do this test" kwim? So he said that he hopes he really
opened a door that will really help me here.
Would I ever think to go to this guy as a patient? No.. I am super
glad I went because I got so much out of it that I'm lacking with my
doctor right now. He was very imformative for me, but I could tell
he wasn't very personable. And I like that in my current doctor!!
And it does feel good to know that I am truely with the best one!!
So, I guess I just have to suffer through this all a little longer.
I'm not due to see my doctor again until the 20th. I have colonoscopy
scheduled for July 3rd. And on the 20th I'm going to talk to him
these other tests and sorta ask him why he hasn't done them
on me (maybe he has a reason), and see if I can possibly get them done.
So that's where I'm at with all this. I'm super glad I went. I walked
out of there feeling really good. And like he said, hopefully it
open up a new avenue for me. In the meantime, I try
and get by as much as I can until I get these test done.
Post Edited (LBJ) : 6/7/2008 5:23:35 AM (GMT-6)