... I just tried to encourage people (so long as they weren't allergic to bees) to give it a try in the hopes that others would find relief (which was the only thing I wanted to gain, helping others if possible)...
I empathize with you completely. I have tried to share my positive experience with Low Dose Naltrexone (LDN) and have gotten a lot of negative feedback (for the most part). Judging from the comments of others, I realize that some people just do not have an open mind to new experiences. I am sorry about that because I feel that if we seal ourselves inside a box...we will never "live to learn and learn to live." I have an open mind and if I had known about bee propolis (that you mention here), I would have wanted to learn more. In the past, I researched pig whipworm (Trichuris suis) with great interest, but decided not to go that route (along with biologics). My personal choice.
Some have even called LDN "snake-oil" and I wonder where that idea came from. Just because a treatment is used "off-label" doesn't mean it is a scam. There is no one getting rich off of LDN. There is a history of Naltrexone use (in high dose) but in the past several years research has been done treating various autoimmune/inflammatory illness with low dose Naltrexone (LDN).
Like you said, the only thing that I wanted to gain by sharing my experience, was to help people. I admit, I am very excited to finally get relief from symptoms (since day one) and I am feeling better than I have in over 30 years. Naturally, I want to share my experience with others who have suffered with Crohn's the way that I have.
Many people are under the misconception that LDN will only provide relief for people with "mild" Crohn's. I would have to disagree since (before LDN) my GI felt the need for me to go on Remicade, I was in a lot of pain with inflammation and "narrowing," and was at high risk for stricture. My pain is gone and I believe that my inflammation is gone also. I can't wait to compare my testing restults (before LDN to after LDN) in July - to see if there is indeed a "difference" (from the relief that I have gotten I believe that there will be a difference). All I know for certian right now is that I feel very good, finally.
If you (or anyone else) has an interest in learning more about my experience with LDN, please email be privately and I will be happy to discuss it with you. I will be happy to share some websites of interest with you, so that you can research it for yourself. Personally, I believe that the best resource is to speak directly to the people who have had experience with the "product of interest" (LDN). I have been in contact with LDN users that are treating various (autoimmune/inflammatory) illnesses and find their (many years of) positive experience, hopeful.
Patti (a/k/a there~ishope)
*dx Crohn's - June 1978
*surgery - Dec. 2002 - Ileocolectomy/resection
*dx Crohn's/Colitis/Acid Reflux - Feb. 2005 (2006)
*B-12 Injection (1cc/mo)
*4.5 mg Low Dose Naltrexone (LDN) - March 2008 - Finally found a treatment that works for me.