I had one last year, and my doc has recently suggested I get another. It really provides more info than ever before for small bowel disease status. And it has the added benefit of stretching out any strictures that it passes through, so it can have immediate anti-partial-obstruction benefits without surgery. The downside i experienced was i felt like i had been beaten up by a gang of thugs for a week after--my guts ached, well beyond the ache before the procedure. I mean, it goes through your entire gut, stretching it out! No surprise it hurts after. It did improve. However, in my case they had to stop the scope before it made it all the way through my SB (this was oral route) because the doc could see such severe inflammation on the scope that he didn't feel it was safe to go further. He tattood a line on the inside of my SB where he stopped, and when I had surgery a couple months later (laparotomy/strictureplasty) the surgeon had to use the tattoo--seen from the outside--as a guide to find the stricture, because a course of Humira had healed the inflammation so well that he couldn't see where to cut...until he saw the tattoo. Priceless, really. I have been ambivalent about doing the second run cuz i already feel so ill that i don't want to deal with the "gang of thugs" effect, but it is truly an incomparable tool for CD.
Crohn's for 25 years, since I was 8
3 surgeries so far, i have tried almost every treatment there is. My core recommendations to live with Crohn's are: get Remicade/Humira/Cimzia if you can, get abdominal massage regularly, and learn to make healthy and easily digestible protein shakes for yourself.