Diet Pills. I want to start taking Alli after a long course of steroids. Is it safe?

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Regular Member

Date Joined Jan 2008
Total Posts : 121
   Posted 6/10/2008 10:37 PM (GMT -7)   
I heard that there can be a side effect of incontinence... This doesn't sound pleasant when I already have Crohn's disease. Despite the possibility that it will be unpleasant... Is it UNSAFE? Does anyone know or have experience with Alli? Thanks very much!!!! Any other diet pill suggestions? I am already on a rigorous exercise regimen but the weight just isn't coming off.


Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 6/11/2008 2:43 AM (GMT -7)   
Hi Meow, I would talk to your doctor before taking any diet pills.

Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 6/11/2008 5:45 AM (GMT -7)   
I agree with teddy you need to check with your doctor before you start alli.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/11/2008 6:41 AM (GMT -7)   
I don't think that is a diet aide for us. I think if anything it could cause more problems. I agree with the above, I think you best talk to your GI first.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 6/11/2008 8:19 AM (GMT -7)   
I personally don't think a diet aid is for anyone...the only proper/safe way to lose excess weight is strictly diet and exercise, it's the most effective and cheapest way as well as sister (whom doesn't have IBD) on occassion would drink those diet shake things and she said all it made her do was go to the can umpteen times more than normal for her, she even commented to me if that's what it was like having CD, I said basically yes, frequency is a big issue along with tons of other possible symptoms, she said the frequency issue was bad enough and she didn't want to even imagine what the rest is like.

Diet; portion control and proper food, not processed/fast-foods/junk foods...drink tons of water and cut way back (or out if possible) sugar. You can get away with over-eating fruits and veggies though, whatever you can tolerate, if you feel hungry indulge in fruits and veggies, they won't make you fat.

Exercise; for weight loss specifically you'll want to to a minimum of 30 minutes/day of cardio and a little bit of weight training too to help you tone (weight training also burns calories).


My bum is broken....there's a big crack down the middle of it!  LOL  :)

Regular Member

Date Joined Jul 2007
Total Posts : 456
   Posted 6/11/2008 9:10 AM (GMT -7)   

Alli works by causing fat malabsorption- something that many Crohnies already have problems with.  On their website, they tell you that loose, uncontrollable stools are a "treatment effect" and suggest you wear dark pants and bring an extra change of clothes to work.  No lie.

Having worked in the weight loss industry (Jenny Craig) I know that you have to be really careful about making any kind of promise about how much you can lose on a program.  But the website seems to be particularly hesitant to give any real info about possible weight loss on these pills.  Based on some fine print on an ad when it first launched, it looked like an average user could expect to lose about 10 lbs in 6 months on their own or about 15 lbs in 6 months on alli.  I don't know about you, but to me an extra 5 lbs isn't worth that much money and the increased risk (beyond what we already have to deal with) of accidents in public.

Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 6/11/2008 10:12 AM (GMT -7)   
I've known two people ("normal" people at that, no IBD) that would have pain and D after taking that. No way would I touch the stuff!
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 30 mg, Asacol, Questran, Toprol XL (for high blood pressure).

Lady G
Regular Member

Date Joined Sep 2006
Total Posts : 321
   Posted 6/11/2008 10:24 AM (GMT -7)   
yeah, I heard stories too, not sure if it was on the news or newspaper or something, but people were taking that (and other ones) and having uncontrollable stools and horrible accidents everywhere they went from the side pointed out by the previous posted warning to always have extra pants, dark pants and underwear with you...that kind of scared me from taking diet pills enough.
27 year old, married. Diagnosed with Crohns at 17, suspected of having for at least a year or so before that.  Alot of Crohns in my family history.  No surgeries yet. Imuran treatment with Prednisone tapering at moment.  Possible Fistula.

Regular Member

Date Joined Feb 2008
Total Posts : 298
   Posted 6/11/2008 10:46 AM (GMT -7)   
I personally would stay FAR AWAY from diet pills. I've had perfectly healthy friends who have taken them and had awful side effects. We have to be careful enough what we put in our systems, diet pills definitely wouldn't help (in my opinion).

Regular Member

Date Joined Dec 2007
Total Posts : 354
   Posted 6/11/2008 2:18 PM (GMT -7)   
I don't think alli is a good idea for people without IBD. It would just stir up stuff that doesn't need stirring up...
Jessica 26/F 30mg pred
dicyclomine 10Mg as needed
Citalopram 20 MG
Culturelle once daily
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol ,colazal)

Regular Member

Date Joined Apr 2007
Total Posts : 345
   Posted 6/12/2008 1:06 PM (GMT -7)   
Dont bother with Dexatrim Max. I've been taking it and it does NOT surpress my appetite. It does work as a very mild stimulant, so now i just use it when I'm tired.

Alli is a definite no - as explained above.

Weight Watchers worked wonders for me. It's also best because it is not a temporary treatment, its a way of life. Its the only way you'll stay thin(ner). You can also eat whatever you want as long as its within your points. For example I've been doing it since April and I have a breakfast sandwich every morning (which takes up 1/2 my points) and have lost 11 lbs. I went from 155 to 143.5
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 

Veteran Member

Date Joined Mar 2006
Total Posts : 1034
   Posted 6/12/2008 9:47 PM (GMT -7)   
you dont pronounce it A-lie for nothing. granted i dont know much about it, but i cant believe its promises as normal. if it is a thermogenic, then i would assume it is a stimulant one like trim-spa, phen-phen and all those other ones. the only non stimulant thermogenic that i know of is fucothin by garden of life, but i cannot attest to their claims as i do not take it.

if you want an appetite suppressant, try hoodia. it is a legit herbal supplement that has been around for ages. i have friends that have used it and they swear by it. i have not tried it.

the best way to lose weight is to change your eating habits - cut out sugars and processed foods. eat organic. get exercise. watch your portions. dont eat for an activity/out of boredom. only eat when you are hungry. dont eat 2 hours before going to bed. eat small meals with snacks. drink more water, especially between meals. eat more fruits and vegetables. eat low glycemic. self control/will power is key.

fat slows down metabolism, so you may want to reduce you fat intake to speed up metabolism, but then again exercising on a regular basis will do this for you. grains/sugars promote weight gain as they are just instant energy, so the energy you dont use immediately gets stored as fat, and thus you become fat by eating a lot of these foods, which are the staple of the american diet. eating fat/high fat does not make you fat. and fat is good for you as it is also energy but serves oh so many other functions.

atkins works for weight loss if you want to dump weight quickly, but it is super hard. i do not recommend that diet for more than a couple of months. it is not a lifestyle to adopt, imho.
Crazy Harry

Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

Regular Member

Date Joined Oct 2007
Total Posts : 208
   Posted 6/13/2008 1:01 PM (GMT -7)   
I bought that a month before I started getting symptoms. I don't think it was connected at all to getting Crohn's, seeing as how I only took it a day. Incontinence: UNDERSTATEMENT. Basically, if over 30% of your meal is fat, or you slip up and snack, you get this orange/brown oily ooze coming from your behind. Luckily, I was off work the day I tried the pills and didn't know I was "leaking" until I couldn't figure out what was all over my chair. I had no clue it was coming from me! I think it's a VERY BAD IDEA for someone with IBD/IBS to take this med, especially this med. I have talked to people who've tried it and have had the same result, although weren't lucky enough to be at home when the "leaking" happened. Good luck!
Pentasa- 1000mg/2x 1/08; Percocet/Ultram for pain; Prilosec 40mg; Xanax-ANXIETY; Cymbalta 60mg
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 6/13/2008 1:25 PM (GMT -7)   
I am sure glad I found this post! I was considering getting some Alli myself but the thought of accidents and leaking without knowing it scare me!

I guess it will be diet and exercise for me!

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 6/13/2008 2:31 PM (GMT -7)   
As the resident tank, at 285 lbs. right now. I gained a tremendous amount from being laid up in the hospital, steroids, and not being able to work out because I had multitude of orthopedic reconstructions. If you really need appetite suppresents then your doctor can prescribe them. And frankly this is one case were perscription is cheaper then over the counter. One good thing about being fat....LOL (joking on myself here) However that does not address the underlying concerns about why you feeling that you need this. For example, I was so hungry all the time, because I was not getting enough what I needed from food. The parts of my intestine that would absorb what I needed were too badly scared. Luckly, I have started an IV multi-vitimen and am feeling better from that. Because of my ortho reconstruction I cannot work out to the level that I want to, about 3 hours a day at least. But for me to lose weight I have to do 60-90 minutes of cardio a day no exceptions. I have been extensively tested by alot of medical professionals and know this is what is best for me (I have a hoarder body type, as one of my medical elevators said that if I am ever in a starvation situation I would be one of the last to die).

My suggestion is get evaluated by your doc and physical trainer that at least has a masters in the area and specializes in people who are chronically ill and have to deal with the dangers and body stress (like ligament hyperextention risk) that comes with steroids and with the general inflammation of our disease. (I know it is perxidoial, but this is something my ortho told me about, so just an FYI.) And as always:
4. Use good judgement. NEVER rely on information or opinions exchanged via the forums or chat rooms to replace necessary, personal consultation(s) with qualified health or medical professionals to meet your individual health or medical needs. Remember that what's right or has worked for one person may not be what's right for you.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...

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