I was on it from the point it came into Canada. I was in the testing of the drug. I took it for four years at every six weeks. I thought it was great and they thought that it worked well too. I came off it when they felt that I was doing so good and no sign of CD, AS or Uveitis for almost 2 1/2 years. I moved to Australia and everything was fine for six months. I returned to Canda to have brain hemorrage (anurysm) 2 1/2 years ago. I did't know till a few days ago that it is a >2% chance of this happening. Since dealing with doc's, upteen tests and medical procedures and surgeries I have found that I also have lymphoplasmacytic in my stomach and it is not caused by a H. Pylori infection. I do beleive that both of these are caused by Remicade. I can not try Humira due to the brain hemorrage. *sigh*
I do not feel that this a bad drug; just that it isn't a good drug for me. I am sure that it is a wonderful drug for others.
I hope that you do find out what is happening and that your health becomes better.
CD diagnosed 34 years ago
Stem Cell Transplant may be back on
Lap-assisted Ileocolic Resection- February 2008
Back on Prednisone - I hate it
Prednisone 1% (eye drops)
Maxidex (eye ointment)
Homatropine 5% (eye drops)
B12, Folic Acid, Vitaman D, Calcium