Hi LAdy C and welcome to HW. I'm sorry you need to be here, but glad that you've found the support.
You will hear from many who have been told by their Docs that everything seems to look normal on the tests, yet we are still suffering. Crohn's has a unique way of hiding itself from the Docs. I was sick with all kinds of gut and joint problems for close to 25 years before finally getting a diagnosis and now, 5 years later, I am "undiagnosed" again, because the DD (darn disease) is hiding once again. Luckily, my GI is still willing to give me the Pentasa, which seems to help a little and my Rheumy has been treating my joint problems with pred and Humira, so I'm covered all the way around.
The symptoms you've described, most especially the bleeding indicate that you're disease is NOT in remission and is in fact active. If the medications that you are taking are not controlling your symptoms, you need to talk to your Doc and demand that he address it. If he does not, you should consider a second opinion. There is no rule that says we can't see another Doc. Just tell your current GI that you'd like copies of your test results for your Primary Care Doc and then you'll have them for whoever you see.
Actually, many of us have binders with copies of everything. Often, we need to see a long list of specialists to deal with the complications that CD throws our way. I've been mostly lucky, but I do have arthritis which is related to the Crohn's and so my Rheumy needed my records. I shuffle reports back and forth between the Rheumy, my GI, my Primary and my Pain Mgmt Doc. It's easier to carry my reports than it is to get most Doc's to communicate directly with one another. Sigh.
HealingWell is a wonderful resource, especially for those newly diagnosed. You'll meet many wonderful people here and perhaps make some lifelong friends. I know that I have.
Just remember, there are all sorts of levels of disease and just because some people have a complication, don't overly worry that it will happen to you. Crohn's seems to be very different for each of us. As I've said, I've been sick for almost 30 years now, but I've never had a fistula, abscess or resection. Although my symptoms can occasionally make me miserable, the actual disease activity seems to be low. So low that it's often hard to even find. Feel free to ask any questions that you come up with. There's almost always someone around who has the answer or who has shared a similar experience.
Keah a.k.a. Wormy
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