I had a follow up appt with the rheumatologist after the prednisone trial. I'm now on 10mg. It helps a lot, but nto as much as 30mg did. On that I felt almost completely normal. The only side effect that was noticeable to me was sleep disturbance but I know that there are many other side effects that may not be noticeable right away.
He gave me some options which were to inject my feet with steroids or to start methotrexate. The podiatrist did the foot injection which did not help much. I told him that even though I liked that my feet were much better (remembering that they probably wouldn't be once I am off the oral pred) , I really liked feeling so normal and want to try methotrexate.I will need to taper down to 5mg pred after one month and I also have to get blood work done monthly.
I have the prescriptions for both MTX and folic acid. Its my choice when I start and that is where my problem is. I'm so worried that I will have awful side effects and right now I am so busy I don't have time for that. The literature they gave me said that side effects usually occur two days after taking the medication and then usually lessen. So I'm trying to decide which 2 days of the week I can spare.
Another problem is that a recent CT Scan (for urological workup) showed the possibility of gallstones. I go for an ultrasound this week. The feeling seems to be that if the US confirms gallstones, the gall bladder should be removed as it almost always happens at an inconvenient time. I don't want to wait until later to try MTX, yet having elective surgery while on it seems complicated. The last time I saw this doctor (5 years ago) I postponed taking a medication he prescribed because I had a gi workup coming up and didn't want to throw another med into the mix. I think he was annoyed by that and don't want that to happen again.
Sorry this is long. I'm interested in any advice about how to handle the side effects of methotrexate, how long do they last, how long will I have to continue having monthly bloodwork. I checked the links provided and while helpful, hearing someone's personal experience would be great. Am I going to feel rotten and if so, for how long?
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica, 10mg prednisone, next???