So weighed myself today.

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Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 6/16/2008 3:57 PM (GMT -7)   
I knew since being on pred I've gained weight. But I haven't wanted to weigh myself, just didn't want to know I guess. LOL But I just did and I've gained about 15 pounds in the month and a half I've been on it. Major bummer. I'm overweight to begin with, so really didn't need any further pounds.
It's so hard though. When I first started the pred I was doing well, trying to watch the foods that I ate and how much. Low calorie ect... Then the pred fully kicked in and I feel like I'm ALWAYS hungry, with very little control over what I eat. People keep saying "Well just be careful." Sure, they've obviously never been on this stuff before. I feel like I'm starving all the time, and I just crave the worst things!
Hoping as I continue to taper this will get better. Assuming I'll have to really diet to get that 15 pounds off? Or maybe some of it is from retaining water? Yeah I know, probably dreaming there huh?
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 25 mg, Asacol, Questran, Toprol XL (for high blood pressure).

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 6/16/2008 4:06 PM (GMT -7)   
Jennifer, one of the evils of the wonder drug. I know exactly what you mean about the uncontrolable cravings from pred. I find that when the dose gets to about 10 mgs the cravings become less bothersome though of course that is different for everyone. I also find the first 5lbs of pred weight comes off easily the rest is like every other lb I have gained in my life twice as easy going on as coming off.
Well, I hope you start feeling better and are able to use less Prednisone.

Veteran Member

Date Joined May 2005
Total Posts : 511
   Posted 6/16/2008 4:17 PM (GMT -7)   
I'm sorry your having to deal with this!! I'm in the same boat. I've been on Pred. for a few weeks now and could barely eat anything
which was odd but I was also being careful. I believe it has finally kicked in because today I ate everything in site!!! But then it could
also be because I know tomorrow I get to be on liquids only in prep for my colonoscopy on Wednesday. I'm over weight as
well so I am really going to try and control this but I have a feeling I'm going to loose the battle!!! LOL All we can do is deal with
what we have to now and worry about the rest later. I feel that the important thing right now is for me to get better and done
with this flare. The weight I will worry about later. I'm hoping to start feeling better soon and I'm going to try and start get back
to my walking my doggies every night. My joint pain is getting better so hopefully I can do this soon.
Living with Crohn's Disease since Jan./2000 but had a few years prior
Still trying to figure out if I truely have it.
(This is such a confusing disease)
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 35mg tapering
No Surgeries

Regular Member

Date Joined Apr 2008
Total Posts : 33
   Posted 6/16/2008 5:12 PM (GMT -7)   
Hi Jen I know how you feel. I was the same on pred. I felt hungry and craved fatty or sugary foods all the time. The amount of junk I was eating was horrible and so at the end of each day I would feel worse than the day before. It becomes a cycle, first you take advantage of being able to eat what ever you like finally, because you are expected to put on weight you eat a little more, then the pred somehow makes you want to continue to eat and then because you feel like crap from pigging out you eat again. As well as this you bloat - and some of it will be water retention and bloating.
Sorry I cant be of some help and that there isnt an easy way to over power the craving for food but try not to stress or feel down about it because as LBJ said it can be a losing battle. Just go with it and commit to a healthier diet and excersise once you are off the pred. I came off 1 week ago and have began a healthier diet getting better at it by the day. I still have to add in some excersise.
Whether you wait or start now cut the sugar first as it can be just as bad as the pred. No sooner that you finish a sugary snack you want more sugar. Once you cut the sugar you will feel better and find it easier to eat better foods on a regular basis. You are not alone.

Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 6/16/2008 6:16 PM (GMT -7)   
Sorry that all of you are going through it with me, or have already had to go through it! But it does feel better to know I'm not alone, that's for sure! I keep telling myself that it's not my fault, or something I can really control. I tried really hard to control it, guess I thought "Nah, I won't eat like that, I'll make sure I won't!" HA! Sure! Oh well, just gotta look for the day when I'm completely tapered off and I can get these pounds off then.
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 25 mg, Asacol, Questran, Toprol XL (for high blood pressure).

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 6/16/2008 6:27 PM (GMT -7)   
Hi Jen I too gained over or at least 50 lbs. mind you I was very skinny at that time and 30 might have been OK. I know it was not the best for me but I guess it kept me from the surgeon for awhile .I didn't like the feeling I had to cope with emotionally but I got threw it. It was better as I tapered. Hang in there and hopefully you"ll be walking those dogs in no time. lol gail

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 6/16/2008 7:00 PM (GMT -7)   
Hey Jen - though I am not on Pred I know how you are feeling. I am more or less in remission and eating more foods and getting sick a lot less. My doc switched my birth control and that just totally triggered weight gain for me. I gained 7 pounds since my last doctor's appointment according to my doc and I think about 5 more pounds since then. She actually thinks some of mine is water weight triggered by the hormones. I am switching my birth control again at the end of the month. I am trying to stick to eat less move more but it is really hard when I am always hungry. I know it is frustrating since you said you were already overweight but hopefully the weight is less noticable then lol! I was about average before this weight gain and now barely any of my pants will button. Elastic is my friend. Sigh. Too bad it is bathing suit season.

Oh to see if it is water weight vs. fat just do a pinch test. Do you look more bloated and pregnant with tight skin? That is more likely water weight. If you can grab and pinch and pull it, it is more likely fat. This is no fun.

Robert P
Regular Member

Date Joined Apr 2005
Total Posts : 127
   Posted 6/16/2008 7:43 PM (GMT -7)   
Hello all, I haven't had the misfortune of being on Pred myself so I won't begin to speak as an authority on the subject matter and I certainly don't want to sound like I'm trivializing the challenge that so many are facing but with as many things as EFT is helped with, the fact that it's free and has no negative side effects I can't help but recommend it. All I can say is if I were in your shoes I would definitely be giving it a try, what would I have to loose but the weight gain and cravings? Speaking of cravings, I don't have a sweet tooth but rather a whole mouth of them and I am an ultimate chocoholic and I have used EFT to reduce the cravings to the point of being much easier to control the craving and so that it's more of a conscious decision to eat it rather than an uncontrolled reaction to the craving. My hope is that some of you will try it and report back the positive results so the others will try it also. Please just make sure if you do try it that you give it an honest try. I have little doubt that it will help if you give it a chance the only question is how much.

You can find out more about it at, and

Dx Crohn's 1999; Started Flagyl 6/8/08 (500mg 3/day) in an effort to eliminate a persistent perianal fistula.  Aside from that have been drug free for a long time thanks to a number of lifestyle changes, much of which was learned from the Listen to Your Gut book.

"Coming together is a beginning.
Keeping together is progress.
Working together is success."
- John C. Maxwell

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