I haven't been here to post for about
3 years. UGH where do I begin!!! I too suffer mainly from Perianal Crohn's. My main disease has been under control for about
5 years, except of course for the booty. I have 1 fistula, but suspect multiple abcesses that converge and drain to the same
location. In the TEN YEARS that I've dealt with this thing I've tried pretty much EVERYTHING. I can't have definitive surgery because it transverses the muscle (I have a horseshoe fistula...LUCKY me). I've had 10+ surgeries on my fistula including many drainages (several under anesthesia due to how deep my tract runs), I tried aloderm mesh surgery, 2 exploratories 1 which ended in a seton placement (had that for about
6 months when I just couldn't take the discomfort from it anymore so I took it out), Remicade for two years (which contributed to me getting Melanoma and didn't work anyway..but that's a whole other story), Flagyl, Flagyl Cipro combo, you name it I done tried it!!!! The only thing that works as a maintenance therapy is good old fashioned crappy annoying sitz baths.
So here I am today, I am no longer on ANY medication because they do nothing but poison my body (in my opinion and experience), and have started a gluten-free diet and a quest to heal my fistula naturally with the help of a Naturopathic doctor. I made significant progress in the first several weeks and the swelling went WAY down (even visibly so on the external
opening), but then several days ago I felt it coming on, oh man did it hurt this time, my fistula abcessed (deep inside) and drained and is still draining from the same
opening. I'm wondering if the nutritional healing therapies are doing what they are supposed to by cleaning out any pockets of trapped pus and mucous?
Overall I am starting to feel so much better just in general from the diet. I'm waiting on a bunch of bloodwork to come back as well as some other tests which might help advance my natural healing procedures and routine to the next step.
In the meantime, I'm going back to my surgeon next week to demand another imaging test to see what the hell is going on down there, but I am not giving up on my new natural path since I've only just begun!!
Maybe there is hope for us yet fellow fistula sufferers!!! I shall keep you posted.
P.S. Pancoaifo- For the diaper rash try this:
33 yo female
DX'd with CD April 2001
Fissure and fistula problems
Countless fistula surgeries (10+) including drainage, AloDerm, and seton
Was on Remicade 2+ years (didn't work)
Pentasa 1500 mg
Occasional Pred during flares
Post Edited (milliondollarbooty) : 3/27/2010 8:17:14 PM (GMT-6)