perianal crohns

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Regular Member

Date Joined Jul 2006
Total Posts : 24
   Posted 6/16/2008 4:16 PM (GMT -7)   
Anybody here with perianal crohns.. fissures, abscesse..etc. the only syntoms..
my son takes purithenol 25mg a day.. vitamins, and fish oil.. his crohns is undercontrol... just the perianal area, is where the disease is... just wondering if anyone sufferes just from this area..

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 6/16/2008 4:25 PM (GMT -7)   
Hello Kikita,

There are a few of us on this fourm with Crohn's limited to the rectum. I'm sad to hear your son has it too!

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 6/16/2008 4:38 PM (GMT -7)   
The rectom is the last part of the internal GI tract, from there it's the anus (anal) and I have perianal crohn's skin tags, but this differs from abcesses and fistulas (thank goodness), they're no fun either but an abcess/fistula is worse...mine are located right on the anus, the rectom is not involved with this, as they are external as the anus is.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Julia Hill
Veteran Member

Date Joined Mar 2008
Total Posts : 560
   Posted 6/16/2008 7:53 PM (GMT -7)   
Sorry to hear about your son.  I to have periannal crohns c/w abscesses and fistula's.  It is very painful.  Flagyl will help periannal crohns, and it is also what I am given when I have an abscess.  Cortifoam inserted rectally also has brought me relief from the Periannal  Crohn's.  Remicade works very well for P. crohn's and can also close some fistula's.  I would talk with your GI, but this has been the treatments I have had on and off over the last 28 years.  I wish him well, and I hope you find the right course of treatment to help him soon.

New Member

Date Joined Apr 2008
Total Posts : 19
   Posted 6/16/2008 10:44 PM (GMT -7)   
There's some wonderful stuff out there called Calmoseptine that's great for relieving the skin irritation. It's non-prescription but you have to order it from the pharmacy usually.

Anyhow, this is one of the more humiliating aspects of my crohn's, I can deal with the bathroom trips and food restrictions, but the diaper rash from the drainage just seems like kicking me when I'm already down ... lol.

I am on the flagyl, asacol, canasa, 8-mp and cipro and none of it has seemed to faze my perianal crohn's. Fortunately, remicade cleared up the issues in that particular region in less the two days...

BTW, just a thought, you may want to check the vitamins he's taking, a lot of them have gluten and other substances that he might want to avoid. I just spent an hour the other day at a GNC trying to find just ONE multivitamin I could take (I eat gluten-free).

Regular Member

Date Joined Jul 2006
Total Posts : 24
   Posted 6/17/2008 8:21 AM (GMT -7)   
Thank you all of you for your info..

not creative
Regular Member

Date Joined Mar 2007
Total Posts : 469
   Posted 6/17/2008 2:47 PM (GMT -7)   
I have crohn's in the last 7cm of my rectum. I have skin tags and a possible fistula... It sucks and I'm sorry to hear anyone else has to suffer from it.
Laurenne, 23 Student @ University of California, Davis.
Dx'd w/ IBS and CD in 2002
On Humira, Strattera, Zoloft, (Multivitamin, Flax Oil, and Omega complex when I remember.)

Regular Member

Date Joined Jan 2008
Total Posts : 28
   Posted 6/17/2008 6:24 PM (GMT -7)   


My 23 year old daughter has perianal crohn's disease. She has had 2 or 3 abcesses and one fistula. She is currently on Remicade. It did heal up her fistula after the 3rd infustion, but she is now having some really bad joint pain and swelling. She is going to take an infusion this Fri and if the joint pain doesn't stop, she is going to stop taking the Remicade. It does wonders for some people and it has healed her, but at what cost?


Angels Mom

New Member

Date Joined Jul 2008
Total Posts : 15
   Posted 7/4/2008 11:18 PM (GMT -7)   
This is the first forum I have ever joined, so I'm not too sure of the posting etiquette in regards to what forum I should post this in, but I think this may be the one.

I have had Crohn's disease now since 1991 (dx'ed in '93 along with a bowel perforation followed by resection). Back in 2000 I had an anal abscess that quickly got to be rather painful. I had it drained by a colo-rectal surgeon in his office and sent on my way. about 4 months ago, I experienced discomfort in the form of pressure high up in my rectum that got unpleasant for 10 days, went away for a couple of weeks, then returned. The colorectal surgeon called in a levator abscess and put me on cipro and flagyl for 21 days. It seemed to clear it up but the surgeon put me on another 21 day course of cipro and flagyl. A week ago, what I think was a small (like a mosquito bite) absess appeared just outside my anus on the north side, but no discomfort. Tonight, I have noticed that it has now got much bigger and is a bit tender. But the south side of my anus feels raw and burning. My question is: should I worry? Its the weekend and I'm concerned that if I go to the ER I'll get a general surgeon to do the drainage. Can I wait until Monday to show up to the ER and get a colorectal surgeon to look at it? There are only a few colorectal surgeons here and there is quite a wait to see them at their office, but the surgeon I saw told me to go to the ER if the absess gets worse. Thanks for any suggestions.

Regular Member

Date Joined Jun 2008
Total Posts : 221
   Posted 7/5/2008 6:21 PM (GMT -7)   
I have crohns in my rectom also.  It can be a major downer and I totally agree with the dippar rash part.  That can be the worse sometimes.  A few weeks ago I had an abcess reform and I went into the ER on a Fri.  I had to wait until I Monday to get it drained but I find that if you go in now, you'll be able to get someone to tell you what you should do.  If you go into the ER and they want to have a general surgion drain it. Tell them that you want a surgion whos specialty is in that area.  You might have to wait until Monday but atleast you will be on their list.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 7/5/2008 10:27 PM (GMT -7)   
Crohn's affecting the rectom (proctitis) should be treated with rectal meds, like cortifoam, salofalk suppositories, ect...crohn's affecting the anus can sometimes also be treated with rectal meds, it just depends on what kind of anal crohn's is going on (skin tags, fissures, fistulas or abcesses).

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined Jan 2003
Total Posts : 1928
   Posted 7/6/2008 5:11 AM (GMT -7)   
Yep, I'm in that club. I've had 3 fistulas and get external CD fissure and inflammation. It's awesome. :)

1 fistula required surgery, 1 closed on its own, and 1 is a recto-vaginal fistula that behaves itself as long as the CD/diarrhea are under control. It's been my biggest problem, even though my colon technically isn't really involved (scopes of that are clear for the most part).
"Only the meek get pinched...the bold survive."

Regular Member

Date Joined May 2005
Total Posts : 75
   Posted 7/6/2008 1:28 PM (GMT -7)   
I have perianal disease with my crohns and have been in a great deal of pain. humira and low dose prednisone have been losing their effectiveness. I am on weekly dosings of humira as well. I am not sure what my next options are or how to deal with the pain. any natural remedies for the pain ? any ointments I can put on down there ?
this really stinks !

New Member

Date Joined Jul 2008
Total Posts : 15
   Posted 7/11/2008 10:22 PM (GMT -7)   

Well, my abscess burst on its own last Saturday; lots of clear drainage right away and a bit more on Sunday.  I saw my GP on Monday and she tried to create more drainage but all that happened was a crazy amount of pain and spent the rest of the day feeling electrical impulses up and down my body.  Had some more drainage on Wednesday, but the size of the abscess is not changed.  My course of antibiotics (cipro and flagyl) is over so I'm worried that the party isn't over yet.  Anyone know if fistula is a danger?


jla:  I have tried accupuncture to relieve arthritis in my wrists and fingers but it didn't work.  However my sister tried it for plantar faciitis (basically a painful tendon problem in the foot from over use) and she said it worked in short term.  I am sorry to hear about your pain and wish I had an answer (which I could use too).

40 yr old male, Crohn's since 1991.  Diagnosis, bowel perferation, resection in 1993.

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 7/12/2008 4:05 PM (GMT -7)   
smartdog...soak the area in the hottest water possible as often as you can. It draws blood to the area and promotes healing. Your abscess that broke, may actually be a fistula that broke through....just a thought. I've had numerous abscess surgeries, and a few fistulas.

New Member

Date Joined Jun 2009
Total Posts : 8
   Posted 6/18/2009 7:23 PM (GMT -7)   
Thanks for all the information on perianal crohn's. This is my first visit to this forum. I was diagnosed when I was 19 years old with Crohn's now 46.. I have been on several meds and over the last few months have been dealing with more rectum problems. The GI doctor and one of my surgeons advised me to start treatment for the perianal crohn's immediately. I have started Humira and reading the side affects scare me. The most positive thing of starting Humira is I was able to come off Asacol & Entocort which added up to several pills a day... I hate pills. Still on Zegerid, Purinethol, Potassium, B12 injections, & Seroquel. This is a very depressing disease ! 2 surgeries- 1st in 2008 bowel resection, 2nd pyloric surgery narrowing.

Veteran Member

Date Joined Sep 2005
Total Posts : 769
   Posted 6/18/2009 8:07 PM (GMT -7)   

I also have peri anal crohn’s and have been going through a lot this last year. I have crohn’s further up too inside my bowel but the peri-anal is smashing me at the moment – I have skin tags, fissures, a fistulas and an abscess which refuses to drain properly. I am currently on the waiting list for remicade and won’t get it for another three months.


My first surgery for the abscess resulted in 2 setons. Then a month later I had to have another ‘mushroom’ drain inserted because the setons weren’t draining sufficiently. Now, a month on from having the mushroom catheter inserted, I am having extreme pain again and can barely walk. Sitting is excrutiating. And I live alone, am 23 and trying to hold down a full time job.


All this time I have been on flagyl and amoxicillin; I don’t know how much they are helping but I have been on them for so long now!


Hopefully once I am on remicade it will help but until then I will be walking around with this tube poking out my butt and extreme pain and constant drainage. Such is life.


Veteran Member

Date Joined Jan 2006
Total Posts : 3143
   Posted 6/19/2009 5:13 AM (GMT -7)   
Yup I'm in the anal sufferers club too. As a matter of fact that is really the only problems I am hving the majority of the time. I have had one fistula taken care of---seton placement resolved it luckily. I can't take flagyl because of the neuro side effects but it was working when I tried it. I only wish cipro did as much as that i could take. I have large tags that are subdividing daily and the fissures are my "favorite" thing lately.
I do a lot of the soaking that cmomx2 mentioned. I am a little miffed that my specialist has not offered a discussion of coritfoam options. He insists on remicade no matter what and I am just into that med for me.
??Calmoseptine??? have not heard of that before. I had some gel from the surgeon when my seton was in that made me a lot more comfortable like you described...I will look into that.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

New Member

Date Joined May 2007
Total Posts : 16
   Posted 3/27/2010 7:14 PM (GMT -7)   
I haven't been here to post for about 3 years. UGH where do I begin!!! I too suffer mainly from Perianal Crohn's. My main disease has been under control for about 5 years, except of course for the booty. I have 1 fistula, but suspect multiple abcesses that converge and drain to the same location. In the TEN YEARS that I've dealt with this thing I've tried pretty much EVERYTHING. I can't have definitive surgery because it transverses the muscle (I have a horseshoe fistula...LUCKY me). I've had 10+ surgeries on my fistula including many drainages (several under anesthesia due to how deep my tract runs), I tried aloderm mesh surgery, 2 exploratories 1 which ended in a seton placement (had that for about 6 months when I just couldn't take the discomfort from it anymore so I took it out), Remicade for two years (which contributed to me getting Melanoma and didn't work anyway..but that's a whole other story), Flagyl, Flagyl Cipro combo, you name it I done tried it!!!! The only thing that works as a maintenance therapy is good old fashioned crappy annoying sitz baths.

So here I am today, I am no longer on ANY medication because they do nothing but poison my body (in my opinion and experience), and have started a gluten-free diet and a quest to heal my fistula naturally with the help of a Naturopathic doctor. I made significant progress in the first several weeks and the swelling went WAY down (even visibly so on the external opening), but then several days ago I felt it coming on, oh man did it hurt this time, my fistula abcessed (deep inside) and drained and is still draining from the same opening. I'm wondering if the nutritional healing therapies are doing what they are supposed to by cleaning out any pockets of trapped pus and mucous?

Overall I am starting to feel so much better just in general from the diet. I'm waiting on a bunch of bloodwork to come back as well as some other tests which might help advance my natural healing procedures and routine to the next step.
In the meantime, I'm going back to my surgeon next week to demand another imaging test to see what the hell is going on down there, but I am not giving up on my new natural path since I've only just begun!!

Maybe there is hope for us yet fellow fistula sufferers!!! I shall keep you posted.

P.S. Pancoaifo- For the diaper rash try this:

or this:
33 yo female
DX'd with CD April 2001
Fissure and fistula problems
Countless fistula surgeries (10+) including drainage, AloDerm, and seton
Was on Remicade 2+ years (didn't work)
Pentasa 1500 mg
Occasional Pred during flares

Post Edited (milliondollarbooty) : 3/27/2010 8:17:14 PM (GMT-6)

Regular Member

Date Joined Mar 2008
Total Posts : 155
   Posted 3/27/2010 7:47 PM (GMT -7)   
This is a link to a previous discussion we had about peri anal crohn's.hope some ideas help you.
Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001..Diabetes,,Sleep Apnea,,Silent Heart Attack,,Blocked Kidney Artery after the Bypass..Bulging Disks, Pinched Nerve..MEDS--,Purinethol,Folic Acid, Fish Oil,Humira,,Bentyl,Anamantle Cream, .and many more. 25 meds..

New Member

Date Joined Mar 2010
Total Posts : 1
   Posted 3/30/2010 1:01 PM (GMT -7)   
Hi, Never been on a forum before so not really sure what i'm doing.
I have recently been diagnosed with Perianal Crohns and have to go back to the hospital in July so they can check to see if I also have it in my intestine. (Very nervous about this) I have been told it has nothing to do with what I eat but have been told by a friend that it would have alot to do with what I eat so I'm very confused. I have skin tags and two cracks but no Fistula's. The only medication I have been given is Pentasa 2g Sachets and Pentasa suppositries. I know it is not curable but I dont feel like I have it under control either. I have some really good days but then the next day I can be sooooo bad too. Is there anyone out there who can tell me it gets better. (Fingers crossed) cos at the moment I am feeling very depressed and feel my life has been taken away from me. I dont feel like I can lead a normal life at all. Doing a school run for example is a nightmare. ANy advice would be much appreciated.

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 3/30/2010 2:43 PM (GMT -7)   
Welcome Nuttytart to the Forum!

I am so sorry you are having these problems. But you have found a great forum with many people who have been exactly where you are now. I myself had a bad start but now I am doing great. Unfortunately, it often takes some time to get the disease under control and get healthy. As you will see by reading posts, it is different for everyone. Hang in there!

I want to make this very clear right up front that you did nothing wrong. Crohn's Disease (CD) is not caused by food. Some foods may aggravate symptoms but the cause is not food. If you are like most, you will find out over time what foods are OK and what meds work for you. It is very important to see an Gastroenterologist who is experienced with CD. This is a specialty and you need someone trained specifically in it. Most of all, patience is really necessary with CD -- it will get better!!

I encourage you to read as many old posts on perianal CD as you can. Use the search bar. Also, one of our wonderful forum Moderators, Ivy6, has a link in her signature to many great discussions on perianal CD, abscesses, setons, and fistulae. Find a post by Ivy6 and click on that link!

I suggest you start your own topic post because this is a very old thread. You will get more people responding to a new post. Ask lots of questions!

Welcome again to HealingWell!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

New Member

Date Joined Sep 2011
Total Posts : 1
   Posted 9/16/2011 4:30 AM (GMT -7)   
I am new to the forum, diagnosed with crohn's/perianal crohn's in January...its the external symptoms that kill me!! I was reading this forum a couple of weeks ago and went and found a tube of Calmoseptine and it has been a life saver!!! I am allergic to Flagyl, which sucks since it is supposed to be the best treatment, but at least I can cope with the pain at the moment. My gastro suggested I may have to try prednisone since nothing else is clearing it...I am embarrassed to admit it, but I am quite vain and very concerned about the side effects (I know I need to grow up and take care of my health first...) Has anyone else tried prednisone to clear up the perianal symptoms? I was actually just called into my office at work because they were concerned I was "stressed out" do you tell your boss your "ass hurts"??

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 9/16/2011 10:14 AM (GMT -7)   
Prednisone never helped with my perianal crohn's skin tags (thats the only issue I have with my anus is those awful skin tags). Flagyl never helped with them either for me.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~
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