Back when I first started to get sick, I was working a FT job as a financial analyst and two PT jobs, one as a on-air DJ and one as a personal development instructor for teenage girls.
As I got sicker, and doctors couldn't figure out what was wrong with me, I had to quit my DJ'ing job. There just wasn't enough time inbetween songs to run to the other side of the building where the bathroom was...I only had ONE dead-air moment, though, so KUDOS to me.
A year after I left the radio station, I found out I had Crohn's. Once I was put on medication, I went into remission for 4 years so I was able to continue the FT job and the other PT job.
It wasn't until this year that I had my first major flare since initially being diagnosed. I couldn't function on a daily basis anymore so I had to quit my PT teaching job. I haven't decided at this point if I'm going to go back. I'm feeling better but I'm not back to normal and the teaching job takes a lot of time and energy, particularly as a PT job.
So I continue on with my FT financial job. Like others have mentioned, I have great benefits, a VERY understanding boss and excellent sick and annual leave. I have also been given permission to work from home at my discretion. I live 2 miles from my office, so that works out well. I haven't told most people in my office about my Crohn's so I very rarely take advantage of the "work from home" deal so as not to draw attention to that (otherwise EVERYONE would want to do that!). I also currently have a mild form of Crohn's so I do my best to be at work as much as possible because I'm aware that mildness may change one day. But there are definitely days that are super tough at work. I sure wish we had a radio in our bathroom!!! That would make for a MUCH more relaxing environment for me in "those" situations.
Diagnosed in October, 2004 at age 33.
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, One-A-Day multivitamin, Culturelle Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date