I need some suggestions. I am in a BAD flare, going on ten months, and I have a few problems. I gained over 60 lbs in three months due to the prednisone, hard on my self esteem too. I am now just off the pred. I have been on remicade since April. It made a HUGE difference. I have horrible hip pain and my right foot swells so much I can't walk. I am currently in physical therapy for my back pain, that I never had before the pred. My hip pain gets so bad I can't walk. I also feel weak all the time and it is hard to hold my ten month old daughter (she is only 16lbs or so). I am also nauses(Spelled wrong) all the time. So I went to my dr, whom I adore, and she said this is all probably from the weight gain, not all my fault. She said if I don't feel better in 5 weeks she'll refer me to a rheumatologist. I feel like a whiner because I feel better, but I am still sleeping all the time. I can't bend over to put my shoes on, 'cus I'm fat, aznd even if I could my feet are so swollen my shoes don't fit. Any suggestions? I am most concerned about being so weak and not being able to do daily activites, load dishwasher, do laundry, carry my baby girl, etc. Then I think it also may be my depression. Luckily I am on summer break, I'm a teacher. I have started exercising, but it's hard on my joints. I can't swim because it is too hard to get in and out of my swim suit. Sorry this is so lng, but when do I know to listen to me or if it is whining? I always think, I'm not that sick, but I feel like life is passing me by and this flare is never ending? Help. Thanks for letting me vent. It was a rough day. We are drowning in medical bills and I'm not even better.
27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Lexapro 20 mg/day, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 9 months.