Got results of my camera pill scope

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potty pooper
Regular Member

Date Joined Dec 2006
Total Posts : 375
   Posted 6/18/2008 7:55 AM (GMT -7)   
Well my GI called me yesterday to say that the camera pill showed that I still have inflammation at the site of my bowel resection (which I had in April).
Not sure whether this is due to Chrohns or maybe it will take more time to heal.  I was hoping for a more definitive answer to why I have cramping, pain and D, but I know that with Chrohns there are no definitive answers.  So I still feel that I am back to square one.  Will be starting on entocort (which I've taken in the past) to see if it helps.  Hoping it just needs more time.  Hate to find that after going through the surgery the Chrohns would return so quickly, or perhaps it never left.
After over 43 years with CD, I'm really tired of it, to say the least.
Oh well, now that I've taken care of testing for a while, I may go visit my granddaughters in Fla.  They always make me feel better!
Best to all.

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 6/18/2008 9:41 AM (GMT -7)   
Hi Potty Pooper!

My colo-rectal surgeon said it takes a long time -- many months -- for things to finally calm down. I'm praying this is the case for you! April isn't that long ago (although it may feel like it). Hang in there and have a great time in Florida!!

potty pooper
Regular Member

Date Joined Dec 2006
Total Posts : 375
   Posted 6/18/2008 11:18 AM (GMT -7)   
Thanks FallColors. I hope you're right. My two other resections healed quickly. I guess age is definitely a factor.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 6/18/2008 1:11 PM (GMT -7)   
Hi Potty I agree April wasn't far away. Hope you enjoy your Grandchildren. Good to know you are not feeling defeated. lol gail

Regular Member

Date Joined Feb 2008
Total Posts : 71
   Posted 6/18/2008 1:16 PM (GMT -7)   
i had 7" removed back in 2002 [i was 17 at the time] and it did take a while to heal up.

now, 6 years later i just had a small bowel series done yesterday which showed narrowing and possibly fistula at the site of my bowel resection. JOY!

best of luck to you!
"you can't fax glitter!"

Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 6/18/2008 1:25 PM (GMT -7)   
My resection was almost 2 years ago. It took at least a year for my guts to stop gurgling and cramping.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (27) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/18/2008 1:36 PM (GMT -7)   
Hey Potty I have had two resections myself. And I learned from my GI that it is very common for there to be some narrowing at the reconnection site within just a short time after surgery. And when Crohns returns its almost always at the reconnection site. My GI says that my problems now aren't so much Crohns but from "mechanical" problems due to the surgeries. Hopefully you aren't flaring again so soon after your surgery and the Entocort will kick the inflammation down.

Things that have really helped me after my resections is to stay strictly on a low residue diet. Avoid all red meat and dairy. And try to get as much rest as possible and to keep my stress levels low. If I do that I have more good days than bad. Now if they could give me some answers on the joint pain I would be a happy camper.

Go and enjoy your grandbabies. They are truly a gift aren't they? I have 5 myself and they can always bring a smile to my face. ((BIG HUGS))
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

ski bum
Regular Member

Date Joined Jan 2007
Total Posts : 451
   Posted 6/18/2008 1:40 PM (GMT -7)   
Hi Potty Pooper. I wish you had gotten better news. I also had a resection in April and I'm still battling with gurgling, gas and D. In fact, I left work early today because I was just so tired of dealing with it. I wanted to come home to my own bathroom. One thing I'm not having though is stricture related pain. I've been eating anything I feel like and that's probably my problem. I hope a visit with your granddaughters will be just the right medicine for you.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08.

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