Hi, I don't post here much at all, but I'm reading all the time. Just being here sometimes makes me feel a little better, and I do learn a lot.
Now my little vent. My sister has CD, as well as myself, and recently diagnosed was my 23 year old son. My son being diag. with it just broke my heart. Anyway, I'm always the one my sister calls when she is having a really bad day, especially CD related. I talk her through it and usually make her feel a little better. My son calls me everyday to give me his update on how he is feeling. I really do love being able to help them, and give my best advise. But there are some days that I really need someone to lean on. Someone I can tell how much I feel like crap, and how bad I really hurt. I have a hard time talking to my sister or son, cause I don't want them to feel bad for me. Crazy me. but I can't take any ofthe Crohn's meds, and since being diagnosed 10 years ago have tried EVERYTHING, had 2 resections, have never had a remission, not even sure what that really is. My sister never had it as bad a me, and now she does, and doesn't know how to deal with it, so I am there for her. Meds do work for her, she just needs to find the right one now, she just moved and has a new DR. so there is that process. My son on the other hand is just learning what my life has been like for the past ten years, and i feel bad for him. I really hope they find something to work for him. He is in the military and they are discharging him for the CD.
I am in unbelievable pain and feel sick all the time, and really wish all this would just go away. I know we all hate this DD. But lately it is just really getting to me.
Thanks for letting me get all that off my chest!