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Regular Member

Date Joined Jun 2008
Total Posts : 35
   Posted 6/24/2008 5:28 PM (GMT -7)   
Hi Everyone,
I was recently diagnosed with Crohn's. And to say the least I'm scared and upset. So what do I do now? I feel I did something wrong to cause this? I have no family history of Crohn's.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 6/24/2008 5:58 PM (GMT -7)   
(((((((((( SJS ))))))))))))))))

Nope! You did nothing! Learn all you can and then keep some notes about what triggers problems for you and what helps. There is some information in the first topic "Chron's Resources" that might help . . . but there is lots of good info reading the posts here. If you don't see a topic that addresses your questions, just ask.

Don't forget that you can use the "Search Site" feature up at the top middle of the page. And you can go back and read older posts using the "Forum Page Listing" numbers which are found at the top and bottom right of the topics page.

Its overwhelming at first . . . but the more you learn the better you'll feel. Each of us is different, so you'll have to figure out how to make life work . . . . but you won't always feel so overwhelmed by this. You'll find your new normal after a bit.

Lots of friendly folks here to help you over the rough spots.

Glad you found us!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined May 2005
Total Posts : 511
   Posted 6/24/2008 6:52 PM (GMT -7)   
((((Hugs)))) You did nothing wrong and its totally normal to feel the way you do!! I've had it for 8 years now
and still feel that way at times!! Just start learning what you can about it and don't be afraid to ask questions.
I'm still learning and questioning things about it!!! Please know that you are not alone!!!!
I have no family history of it either!! ((Hugs))
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
Meds I have tried:  Just about everything 
Meds currently on:  Prednisone 30mg tapering
                           Methotrexate injection 12wks
                           Folic Acid
No Surgeries

Crohn's 4 ever
Regular Member

Date Joined May 2008
Total Posts : 207
   Posted 6/24/2008 6:55 PM (GMT -7)   
Hi Sjs, I understand how you feel.. Even with time, sometimes we all get scared, but as Alwaysrosie says, you need to educate your self and get on the right meds, depends what stage you are in mild-moderate-severe you will have a GI or doctor to set you in the right direction. Some think therapy helps, but worrying will cause your flare ups to go up a notch. As always rosie points out, it is overwhelming and frustrating. The site has helped me alot and I have had crohns over 30 yrs dx 15. What kind of drugs are you on??? Cheer up, help is on the way and you have supporters here to guide you. Welcome to the forum!
Tough times don't last long, tough people do!

Regular Member

Date Joined Jun 2008
Total Posts : 35
   Posted 6/24/2008 7:12 PM (GMT -7)   
Thanks everyone. I'm really glad I found this site. No one really understands what I'm going through so it helps me so much to know I'm not alone. I was given Prednisone (low dose), but 3 weeks later I feel a little better but still have problems. I went to a specialist today he said they did not have me on Prednisone long enough, or high enough dose, so he put me back on it.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/25/2008 6:59 AM (GMT -7)   
Welcome sjs0018 to Healingwell. As you can see we have alot of wonderful and supportive folks here. I too am the only one in my family with Crohns. Lucky us, huh? Once you get treatment for your Crohns things will start to look up.

I see that your on Prednisone? That is a great medication to help get the inflammation under control. Has your GI said anything about any kind of maintenance medications. Prednisone is not a medication to be taken longterm as it can damage your bones. But there are other medications such as 5-ASA medications, immune suppressants or biologics that can help get you into remission. Good luck and look forward to hearing more from you soon.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 6/25/2008 7:01 AM (GMT -7)   

Welcome to the Group! I had similar feelings as you did. You also may have some family history and not know it. I have a feeling I may too since some members of my family may have been undiagnosed.

Read here a bit and you will feel better. Just remember all of us are very different so you may not have the same symptoms or problems as all of us.



Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.


Regular Member

Date Joined Jun 2008
Total Posts : 35
   Posted 6/25/2008 10:54 AM (GMT -7)   
My GI said there was options for the long term. But really did not go into detail. I almost feel like he was too laid back about the hole thing. In a month I'm going to a different GI.

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 6/25/2008 1:24 PM (GMT -7)   
Welcome to HealingWell! No, nothing you did caused this, nor likely could have prevented it either. I remember going through all that too. Along with anger, fear, despair. Remember for most Crohnies, it does get better with time, also. When you finally get a remission that lasts, you may wonder if you were really sick! Yes, it can happen.
We are always here for you, don't hesitate to ask for support advice, support, or just co-miseration.


Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 6/25/2008 4:41 PM (GMT -7)   
Hi Welcome we all share your fears but have managed to find help and support from each other. I would think your GI probably thought you had enough to cope with for now. Hang in there and things will get better. I also find a low residue diet helps me. lol gail

Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 6/26/2008 8:48 AM (GMT -7)   
welcome! the first few months are often the hardest, with lots of tests, changes of meds, changes of docs...we all have been throught that, so keep asking questions and reading posts. you will learn so much--this site pretty much saved my life. take care. yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 6/26/2008 12:00 PM (GMT -7)   
Welcome to Hea;ling Well
This is the best support group and it has the greatest ppl here to help you out in your times of need
Check out Resources and back pages as well ............

Stay with us plz...............LYN
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                               FIGHT the FIGHT with all YOU HAVE
         Be Well All and Stay With Us We are Here To Help

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