Confused about symptoms

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Regular Member

Date Joined May 2008
Total Posts : 24
   Posted 6/25/2008 1:34 AM (GMT -7)   
I have a constant pain round and above belly button.Been eating mostly mush since Jan. Minor fevers 99.6 or 99.8, My knees, one elbow, shoulder and wrist are inflamed, hot and getting up stairs is hard. It all flares up and down, and when it does it sets of an interperiod bleed, with alternating const. and diar.
Flexible sigmoid scope couldnt get far but all was normal.
Docs say that if crohn's is present anywhere there is always a sign of it in the colon. Stomach scope found nothing, but pain is between them. Ultrasound coming up next. My docs say it is probably IBS. I cant find these symptoms attributed to IBS on any website. My joints are starting to flare again, so here we go.
Any of this familiar or am I in the wrong place.

Crohn's 4 ever
Regular Member

Date Joined May 2008
Total Posts : 207
   Posted 6/25/2008 6:53 AM (GMT -7)   
Sounds familiar, when I first got my worst pains 15 years ago the pain and bloating was around my belly button, but my Illium was the culprit, and had 2 resections later and my appendix out for "exploratory surgery". It took me 8 months for diagnosis of crohns, but that was 15 years ago, times have changed and techology is better. Tell your GI to do a colonoscopy and a scope at the mouth. They put you out nowadays, but that is how I was dx. Good luck, hope you find some relief! I dont bleed and that is IBD not IBS. Stay away from dairy, it is a culprit of IBS. Chin up.
Tough times don't last long, tough people do!

Veteran Member

Date Joined Feb 2007
Total Posts : 1010
   Posted 6/25/2008 12:38 PM (GMT -7)   
I have never heard that if crohn's is present it always shows up in the colon. I have had crohn's for more than 30 years. My small intestines have shut completely twice from built up scar tissue and I have had three major surgeries, with path results positive for crohn's. I have never had a hint of crohn's in the colon except a fistulous tract from in front of an occluded section of bowel in the TI that communicated with the sigmoid colon. Since that was removed in 1993 there has not been a hint of disease in the colon even though I have suffered almost constant inflammation in the small bowel. I don't know whether your doctor was speaking about your case specifically, but if he really is of the opinion that crohn's always occurs in the colon, get another doctor.

30+ years living with Crohn's.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/25/2008 12:45 PM (GMT -7)   
I agree with Bellenstein, I have had two resections myself and my disease has always been at the terminal ileum area. I have never shown Crohns in the colon.

I would ask for a capsule endoscopy. That is the best test to diagnose Crohns in the small bowel.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 6/25/2008 1:14 PM (GMT -7)   
There are no hard, fast rules about CD always manifesting in the Colon. In fact, its fairly normal for much of the inflammation to be in the Terminal Illeum. Some GI's need to read the literature! I try to UNDERSTAND my illness..


Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 6/25/2008 2:41 PM (GMT -7)   
Judith, I would recommend that you go to a very good Rhuematologist. It sounds as if you have some inflamitory arthritis whether chron's arthritis or RA or MCTD a good rhuemy is the best person to get this sorted out and just in case its RA or other distructive arthritis you want to get treatment as soon as possible.

Regular Member

Date Joined Jul 2004
Total Posts : 422
   Posted 6/25/2008 3:44 PM (GMT -7)   
My GI has told me he has several patients who have been Dx with Crohn's but have NO SIGNS of inflammation/ulcers in the colon or last part of the small intestine. They were Dx based on symptoms of inflammation ELSEwhere plus blood tests.

A STRANGE disease this is...

Diagnosed in October, 2004 at age 33.
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, One-A-Day multivitamin, Culturelle Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 6/25/2008 5:51 PM (GMT -7)   
Hi Good advice given here. lol gail
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