Waiting time for Remicade?

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Regular Member

Date Joined Oct 2006
Total Posts : 153
   Posted 6/25/2008 11:34 AM (GMT -7)   
Hi everyone,
Well, my GI has decided it's time for me to start Remicade. Thank god I have really good insurance through work and it will be covered. But now I'm waiting for him to get back to me about when treatment will start. This has been taking forever. It's already been 6 months since my symptoms first started (fistula) so I'm worried that it's become permanent at this point. I hope not. Anyways, how long did people have to wait for their first infusion?

32-year-old female diagnosed with CD in 2001.
Currently taking Pentasa 4g x four times daily and probiotics.

Regular Member

Date Joined May 2006
Total Posts : 229
   Posted 6/25/2008 11:57 AM (GMT -7)   
Well, I live in Canada. And from the time my GI doctor said were gunna start remicade to my actual first infusion was like 1 month. It probably could have been 3 weeks if I was bold enough to call the right people. Here in canada there is a lady called the 'remicade coordinator' who checks to see what is covered of your remicade, then gets the Dr. to prescribe that much (or more if you want to pay extra), then sets up the infusion. I think it also took me longer since I live in a rural town, one hour away from my GI doctors office. So they had an extra step in contacting my family doctor here in town to set up an infusion appointment at the local hospital in ambulatory care. If I woulda drove in for my infusion to my GI's doctors office, I'd imagine it would have only been about a 2 or 3 week waiting process. Also, I did get a TB skin test done, so that process took about a week for my doctor to see the official results.

Veteran Member

Date Joined Aug 2003
Total Posts : 1017
   Posted 6/25/2008 12:09 PM (GMT -7)   
My only problem was getting on the calendar when there was an opening that worked in my schedule.

Maybe you should take the initiative and contact your insurance to see if he has even begun the process. Or start calling his assistant once a week till it is done, because the sqeaky wheel does get greased.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.

Regular Member

Date Joined Oct 2006
Total Posts : 153
   Posted 6/25/2008 12:19 PM (GMT -7)   
I'm in Canada too. And I've been calling my GI's receptionist every day since my insurance papers went in (I personally faxed them so I know it was done). Poor woman hates me! But hey, whatever it takes. She keeps saying he'll call me back but hasn't so far. And so the wait continues........

32-year-old female diagnosed with CD in 2001.
Currently taking Pentasa 4g x four times daily and probiotics.

Crohn's 4 ever
Regular Member

Date Joined May 2008
Total Posts : 207
   Posted 6/25/2008 12:27 PM (GMT -7)   
I am also from Canada, when I was on Remicade, the Insurance I have is great, all paid for took about 3 weeks, and I too live in a small town.  Good luck hope it works for you, fingers crossed! yeah
Tough times don't last long, tough people do!

Regular Member

Date Joined Jan 2008
Total Posts : 101
   Posted 6/25/2008 12:37 PM (GMT -7)   


I just started remicade myself. I was in a flare for about 6 months before all other meds failed and it came down to remicade. I was worried because once I started remi I knew I would be on it forever (I hope it works that long). But, I was so sick I couldn't get out of bed and I was missing out on my children growing up. Anyway, from when my dr said remicade to my first treatment was three weeks. It would have been shorter, but I went on vacation for a week which meant I couldn't have my TB test until after my vacation. So, it probably would have been two weeks. I live in Colorado and I get my treatments at a center, not the hospital. Also, I have good insurance but my remicade co-pays were $500.00 so I called remi-start and I actually qualified under their program and now my co-pays are between $100-$200. An huge savings. The great thing is they don't look at income for you to qualify. I make quite a bit of money, but it goes out in medical, and I still qualified. This is probably more than you wanted, but I have one more thing. Remi is my miracle drug. I haven't felt this good in years. So good luck to you and I hope you get treatment soon.


27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Lexapro 10 mg/day, Wellbutrin 150 mg/day, Remicade, topamax, nadalol, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 10 months.  

New Member

Date Joined Apr 2008
Total Posts : 8
   Posted 6/25/2008 1:00 PM (GMT -7)   
Hi there
I had remicade 2 yrs ago....we call it infliximab and it stopped me from having to have surgery...at the time...also helped my sister....
only had to wait 2/3 weeks and first infusion iwas still in patient in hospital but the remaining 2 I just attended an out-patiemts day care unit and had the infusions...
good luck

Regular Member

Date Joined Sep 2006
Total Posts : 181
   Posted 6/25/2008 1:50 PM (GMT -7)   
Depends on the insurance company.  I had one approve it in under a week, another one took like 4 weeks.

want_2_be_well AKA Mel
32 year old Female
Diagnosed with CD 2006, had been ill off and on for over 10 years.
Also have seasonal allergies, milk allergy, and asthma.
CD Meds: Remicade every 8 weeks, Imuran 50 mg, Pentasa

Regular Member

Date Joined Nov 2007
Total Posts : 165
   Posted 6/25/2008 3:24 PM (GMT -7)   
My insurance took almost 6 weeks to approve first treatment...then another 4 weeks for an opening at the remicade infusion room. TOTALLY worth the wait!!! It has changed my life :)

Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 6/25/2008 5:49 PM (GMT -7)   
My doctor had to fight for more than two years to get money to re-infuse me :-/
Co-Moderator Crohn's Forum.

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