I just started remicade myself. I was in a flare for about 6 months before all other meds failed and it came down to remicade. I was worried because once I started remi I knew I would be on it forever (I hope it works that long). But, I was so sick I couldn't get out of bed and I was missing out on my children growing up. Anyway, from when my dr said remicade to my first treatment was three weeks. It would have been shorter, but I went on vacation for a week which meant I couldn't have my TB test until after my vacation. So, it probably would have been two weeks. I live in Colorado and I get my treatments at a center, not the hospital. Also, I have good insurance but my remicade co-pays were $500.00 so I called remi-start and I actually qualified under their program and now my co-pays are between $100-$200. An huge savings. The great thing is they don't look at income for you to qualify. I make quite a bit of money, but it goes out in medical, and I still qualified. This is probably more than you wanted, but I have one more thing. Remi is my miracle drug. I haven't felt this good in years. So good luck to you and I hope you get treatment soon.
27 year old female dx with CD in 2001. P
entasa 4 g/day, Prednisone 30 mg/day, Lexapro 10 mg/day, Wellbutrin 150 mg/day, Remicade, topamax, nadalol, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 10 months.