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Veteran Member

Date Joined Sep 2006
Total Posts : 845
   Posted 6/26/2008 1:35 PM (GMT -7)   

Post Edited (tsitodawg) : 11/14/2011 2:25:12 AM (GMT-7)

Regular Member

Date Joined Jun 2008
Total Posts : 125
   Posted 6/26/2008 4:20 PM (GMT -7)   
I tend to get numbness in my hands and feet, but that is about as far as it goes.

Hang in there and know that you are in my prayers :-)

35 year old female - Diagnosed w/Crohn's 2002 - Surgery 2004

Currently taking: Pentasa, Entocort, Immodium, Zoloft, Wellbutrin, Seroquel

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 6/26/2008 5:52 PM (GMT -7)   
(((((((((((( Dawg ))))))))))))

Sorry you are having nerve pain. It is just aweful, isn't it?? Mine started like a hot knife down my leg. I had some physical therapy, traction and some spinal injections. I also had the EMG tests for my spine and for my wrists. . . . but they weren't as bad as I thought they'd be . . . . sorry you had such a bad experience. . . yikes!! The pain got less intense but over the years it is still very much there in my hip and down my leg.

I'm so sorry you are dealing with this too.

I did find that it is really important for me to position myself very carefully for sleep. I never liked sleeping on my back, but that is the only way to get away from the pain sometimes. I put one long pillow almost under my hip and my knee is bent and supported by the pillow. Another pillow, similar on the other side. Smaller one under each arm and splints on both wrists. *sigh* I don't always need to do this, but often its the only way to escape the pain. Is your pain worst at night???

If it is cool enough in your bedroom, heat is also WAY helpful sometimes. I use a grain bag (you can fill a man's tube-sock 3/4 full with feed corn or rice, fold the top down and stitch it twice. Pop it in the microwave for 2-3 minutes and you'll have a nice hot-pack that lasts a very long time. You can also put it in the freezer and have a cold pack. I made several and I use them all summer and all winter.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Regular Member

Date Joined May 2008
Total Posts : 117
   Posted 6/27/2008 12:43 AM (GMT -7)   

Hi!  Before I had the stomach pains that led to colonoscopy that led to diagnosis (they saw terminal ileitis), I got tons of numbness in my hands feet and shooting pains in my legs.  I was convinced I had MS.  everyone assured me I didn't, but I really didn't know what to think.  probably after I'm dead, they'll know more and say "oh, yes, numbness is the first sign of Crohn's, it's caused by the reaction of the body to...which if not dealt with will lead to..."  anyway....a nerve conduction test, great, my docs didn't think of that, they tend to minimize most of my symptoms as psychosomatic.

I read up on MS and took supplements that people w. MS feel helps them (I used to have a list, but off the top of my head, all I remember is lots of vitamin D) and the tingling went down.  no doubt the docs would say it's coincidence, and it could be.  so for me tingling was the first sign, and occured when I was under the most stress.

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