Your prednisone situation parallels mine exactly. I have NEVER been able to stay in full remission without the use of prednisone. Once I have fully tapered off the 'roids I always relapse (I usually relapse after about
3-6 weeks after fully being off the 'roids). My GI likes to try and start me on 40mg and then have me taper off 5mg per week. If 40 doesn't do the trick (until recently it hadn't) then he puts me on 60mg for a few weeks and then has me taper by 5mg a week. I am on Remicade and Remicade does not do the trick without prednisone. I am frustrated b/c I ALWAYS ALWAYS relapse once I'm fully off of the prednisone. I would like to kick the stuff to the curb, but have come to grips that it is the ONLY medication to this point that actually gives me my life back (no awful bleeding, uncontrollable accidents, etc etc).
I am sorry to hear about
your situation regarding the pregnancy. My doctor has told me the same thing, that I as well as the baby would not make it if i were to get pregnant. I, like you, have severe Crohn's and we have to take care of ourselves first. Good luck to you and please update us on how you are doing. I will definitely keep you in my thoughts and prayers.