really painful endoscopy

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Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 6/28/2008 9:43 PM (GMT -7)   
hi all, I just had my endoscopy on Thursday. I wasn't at all worried because the last endo I had, I was totally put out and only remember waking up and asking if the dr. would be in soon, only to be told that everything was over all ready. Not so easy this time.
They gave me sedation, and a narcotic to help with the pain, sprayed the back of my throat and then told me to swallow , what looked like to me to be a GARDEN HOSE... yikes... I had a terrible time swallowing the thing...and it hurt like the dickens every inch of the way. I thought my chest was going to explode.
My GI said that he saw a lot of scarring and some inflammation, but felt that my Pantaloc was taking good care of it overall...didn't think that was the source of my 3 day bleed a few weeks ago. He also said the constant pain I have in my left upper quadrant is likely from my colon.
So now I have a colonoscopy scheduled for July 10th. Can't say I'm looking forward to it.
Have any of you ever had a painful endoscopy?
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis

Veteran Member

Date Joined Jan 2006
Total Posts : 730
   Posted 6/29/2008 12:31 AM (GMT -7)   
I had a upper GI endoscopy once when I was in the hospital. The GI gave me a big shot of demerol or something that knocked me out, so I don't even remember it. I was pretty scared before it because I couldn't imagine it feeling anything but bad. I've had nasal gastric tubes, and they are no fun and they hurt, but I didn't get the advantage of any drugs. I've had many colonoscopies and was out for all of those too. Maybe if you talk to the doctor and explain your concerns they can give you some more sedatives.

Seems like we suffer enough with this disease without having to put up with pain and discomfort from this sort of stuff. I wish more doctors understood this.
Matthew McKenna,

"I'm just along for the ride."

Crohn's 4 ever
Regular Member

Date Joined May 2008
Total Posts : 207
   Posted 6/29/2008 6:29 AM (GMT -7)   
Hi Marie, I had mine done 15 years ago, and it was the only way after 8 months of tests to get my Dx. Well, when the specialist said I had to go for an xray, he never told me what kind and I left too chicken, he called me later and said it is crucial for dx. Well they froze my throat, I dont recall them giving me anything, for me to be calm! I choked on the spray when they initially froze it, and then they put the tube down my nose and it was hurting! I couldnt breathe and I spewed in the technologists face, and they were trying to get me to say my name cause I was not able to swallow or breathe . Well lo and behold somehow it went into my lungs and had to pull it out and do it all over again!!! In my head I was screaming, and I wanted to pull it out, but the only thing that kept me from doing that is I saw the screen and watch them shoot the barium through. It was very loopy and many strictures. Some docs put you out, some dont. The moral of the story that was my ticket to my answers of suspicious Crohns. What a nightmare! And, hopefully never again.
Tough times don't last long, tough people do!

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 6/29/2008 8:48 AM (GMT -7)   
I've had more than I can remember and several that were painful, most were not. The ones that were painful, were because the meds either didn't take effect yet or my IV had blown. If you are having pain, your doctor should stop, give you more meds and wait for them to take effect. I guarantee, if they were the patient, they would demand that the doctor stop until more medication was administered. I'm sorry you had to go through that. I know when I have had it done and I fought the tubing all the way down, it left me with a terrible sore throat for days.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Jun 2008
Total Posts : 25
   Posted 6/29/2008 9:03 AM (GMT -7)   
I recently had one done and the doctor asked me light, medium or heavy - I told him I don't want to feel anything and that's the last thing I remember before waking up in recovery!

I've had what they call a small bowel enema where they thread the line through the nose and down the esophagus and through the stomach to the small bowel where they then introduce the barium. There they didn't use any sedation at all and it was quite unpleasant - and I too spewed all over the technicians :-)

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 6/29/2008 9:42 AM (GMT -7)   
I've had the small bowel enema also , quite a few years ago.... they tried and tried to pass that darn tube down my nose, but I have deviated septums or something,and they couldn't get it thru...blood all over my front...they finally decide: Oh this isn't they had me swallow the thing... I gag and spewed too... then, after the barium had reached its destination , I had an accident.... all the while with a pounding migraine. I've never forgotten it.... and I swore that I would never have one of those again. I have a feeling that I may have to submit to another one though... Do they put you under for that one nowadays.
I will definately tell my GI that the sedation they gave me for my endoscopy didn't even come close to sedating me at all ... the nurse kept asking me if I felt whoozy yet and I kept saying no. Then the minute the dr. walked in she gave the last of the sedation which of course , was too late for it to have any effect... either way , I didn't feel sedated at all, even afterwards.... so I'm going to ask for a whopping dose for my colonoscopy.... and hope that I don't have to go for another barium the way , that was the only test that confirmed my CD also. !
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis

Regular Member

Date Joined Jun 2008
Total Posts : 49
   Posted 6/29/2008 6:11 PM (GMT -7)   
The first time I had this procedure done I had an upper endoscopy; Becuase of my poor interaction with benzodiazepiens (the drug used to sedate patients and cause an amnesia of the procedure) I had to go through it cold turkey. They sprayed my throat with lidocaine but that did virtually nothing, and they gave me a mild tranq so I would feel sleepy. It took me five tries to swallow the whole thing and it had to be the most painful experience ever, the procedure was about 7 minutes but it felt so so much longer, I gagged a few times through it and when they were finally done the camera came out followed by some lovely stomach fluids. I remember leaving the hospital saying that I would rather just suffer then ever have that done again, it was probably the worst experience of my life. A couple weeks ago I had a upper endoscopy and colonoscopy back to back (no punn intended) with a GI specialist who is renowned in Ontario, beacuse of the experience I had last time I told him to just drug me and I would worry about the drugs effects later, I went in and just remember saying to the med student 'dont let me throw up in my dreads, that would be a ***** to get out' she chuckled and I remember the doc putting something into my iv and then I woke up a few hours later in the room I started in. Unlike most I was aware of what had taken place but I had no memory of the actual procedure except for a few brief moments of severe sharp pain that I remember cringing at. It was like a walk in the park. So the can really go either way, my advice is to take the drugs, and if they dont offer any ASK!

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 6/30/2008 12:26 AM (GMT -7)   
I sure will....
thanks for all your replies everyone.
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis

Regular Member

Date Joined May 2008
Total Posts : 117
   Posted 6/30/2008 4:06 AM (GMT -7)   
I've had two, always been put completely under, what happened to you sounds sadistic!  maybe verify that your insurance will pay for it, I think they used propofol, but the trick is, you HAVE to have an anesthesiologist present, it shouldn't be done by the GI or a nurse and some plans won't pay!  good luck!

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/30/2008 6:58 AM (GMT -7)   
I kept waking up during my last one and remember gagging. I love my GI, but his scope skill sucks. Both types of scopes I am miserable after he does them. I believe its because he doesn't give enough medication.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 6/30/2008 7:06 AM (GMT -7)   
Wow, that is awful! I am very lucky my GI is good at the scopes (both ends) My endo did not hurt at all.

I am so sorry you had pain!!!



Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.



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