In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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yeah....that can be tough for the woman and a bad foot in the mouth for the one who makes the comment (don't feel too bad for them but still just a little...people usually ask thinking they are bringing up a very very bright and happy event)
But you ladies are not the only ones who get verbal slaps...try this one...it happened just last week to me.
Before the crohns hit me many years ago I was in (modesty aside) the prime physical shape of my life and living large. I stood a full 6'1", 225 to 230 lbs, arond 10% body fat, 50 to 52 inch chest and arms that showed off every muscle. Lifting weights or doing kick boxing 20 hours a week. I had a full head of hair, with just enough gray to highlight the sides over the ears. Fully tanned from fishing in the Gulf or hanging on the beach.. I was a 41ish guy who looked like he was in his early 30's. I know this sounds like bragging but it is the plain truth and I am required to say it so as to build up the true to life punch line. Today, after almost 10 years of crohns and the fun associated with it... I am around 180 lbs sometimes less...suit size is now a 40 or smaller, my hair has more gray than brown and because of age and meds is a lot thinner....my kids joke that what was once my fore head is now my eight head...twice as wide as a four. The skin around my neck is a bit looser and what was once a size 17.5 is now a 14.5.
...I was in sales then like I am now...same company, still working with many of the same clients. Thing is with my job, once I get someone started on my products I usually turn them over to local sales people. I only see my clients again if I am making coutesycalls with the area rep or at sales conferences.
So last week I was at our sales booth working the crowd along with our corp. dietitian. I notice she is talking with someone who looks very familiar...I read the name tag and remember her as a customer who asked me to speak about customer service to her statewide association. This had been about 9 years previous and we had spent a fair amount of time together in preperation and negotiations....as I approached, our dietitian started to introduce me but before she could say my name I said " Oh I know Sarah, we worked together on a project for her program." Sarah looked at me and said "sorry I don't remember you, I don't think we have ever met!" I asked her if she remebered working with our company for her customer service seminar. She just lit right up and beamed with a big smile and said "oh Yes!" So I told her I was the guy she worked with on it.
Without missing a beat, she looked at me with great seriousness, shook her head no and then turning to our dietitian (a female) she blurted out in a very serious women to women voice " Oh NO! It couldn't have been him, the guy I worked with was really good looking!" then with a wink to our dietitian she adds "You should have seen how this guy filled out a suit!"
I was crushed...but I was still better off than she was, once she took a closer look, and with our dietitian insisting I was the guy, she came to realize I was him and at the same time understood what she had said and how she had said it.
I think at that moment I knew how a woman feels when she is mistaken for being pregnant.
Hi guys... I'm not a skinny crohnie....used to be , but at 45 I just went POOF. So I'm a fatty. And what I get from people is not are you pregnant or when are you due.... but "I thought people with crohns were supposed to be skinnyl" ....in other words... you're much too fat lady to possibly have crohns disease. I've even gotten that remark from another crohnie here in town . she is bone thin( like I used to be) , I when she told me she had CD I said , what a coincidence so do I... She looked at me up and down and said: ' YOU, have CD, Impossible! people who really have CD are skinny. "
That's why I was so thrilled when I joined HW and discovered I wasn't the only crohnie with a weight problem. So I don't look pregnant, just FAT!
I have had this problem most of my life. I was Dx when I was 10 and I was very small at the time. It really bothered me when I was in high school there was always a rumor going around that I was having a baby. And what I thought was funny was I had at least 6 babies a year.. I could never get from the kids at school how this was possible. But we all know how teens are
Now as an adult who has have two kids I still get the same thing I use to say that it was just left over weight from my baby. That’s until my son turned 4.
I have also been known to just agree that I was having a child. (Make sure you tell your hubby first Trust me).
Lately I have just been telling me NO I am not and sometimes I am not the most polite person. To me you should never assume that someone is pregnant.
I do love the idea to make your cheats look bigger. Who couldn’t use that?
"I thought people with crohns were supposed to be skinnyl"
Marie-Claire, I have the same problem. then my Doc told me not all Chronies are skinny. It is terrible how people feel they can comment on your appearance. I get some funny looks when I say I have CD, usually from people that do not have it.
I would never guess someone is pregnant. Unless they told me then I would congratulate.
Mel, sorry this happened, I know it is frustrating cause you feel bad when you are bloated so a comment like that has got to be upsetting....
hspenser, that does sound like it would sting... I get some stuff like that too. People barely recognize me when they see me. I am so sad when it happens.
Diagnosed w/ Crohn’s Disease March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort
Diagnosed w/ Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.
I too am so bloated and gassy! I have had crohns for 9 years but never had this much bloating and gas. I am not finding that anything is working for it either. I am happy to read your posts though because I wasn't positive it was the crohns and was worried there was something else going on. I am going through a flare, albeit a bit different than usual as in there is no blood. I thought since no blood, and all this gas and bloating I may have something else going on. Hopefully the gas will pass! I can't even get any of my pants done up - which is silly because I have lost about 10 lb with this flare so they would all be baggy but for my belly. It is fine in the morning but by afternoon is gradually gets worse and worse until it feels like there is a huge balloon in my stomach! Sometimes I will gently rub it to try to release some of the gas but even so, it will all be back within 10 minutes. What a pain!
I have not started back on my prednisone because the lack of blood made me think I was not really very irritated in the colon area. Do you guys think that prednisone would help this gas and bloating? If so, I will give it a try - I really can't stand this! Doc just kinda shrugs like, well that is the disease.
Also, have you found any over the counter medications that work for the bloating and gas? I am trying Gas X but really not getting any results. I also eat very small amounts at a time. I am very thirsty though (due to the lovely D) so I find it hard not to gulp water, but I do try to keep it to small sips all day. I have tried bubbly drinks like 7-up to bring up the gas but that doesn't work either.
What a joy!