I feel so defeated! I haven't posted much in a long while because I maintained a beautiful phase of remission while pregnant with my twin girls. Life has been particularly emotional with the loss of one of my daughters and her upcoming anniversary and my daughter's first birthday.
I am now seeing a new GI, which I'm VERY excited about
! I'm now a patient of Dr. Christian Stone. I loved my old GI, but Dr. Stone is at Wash U in St. Louis and they are more of a teaching/researching hospital and we just decided that is where my care needed to be so we can stay on top of new drugs. He had a lot of different, interesting theories and has information on new studies that made our decision to double the Remicade rather then add Imuran (which was a controversial drug for my fertility doctor). They ran a blood panel on me, and now something is up with my liver?!?! I can't win! My SED rates are steadily increasing, and now they are bumping my Remicade to double the dose 10mg/kg. I feel so defeated!
Since yesterday, I've resorted to pain pills. I've taken maybe a total of 9 over hte past 48 hours, but I haven't taken pain pills since my c/s last August. And, because of that, they are making me sick. So, now I'm going at both ends, lovely! Again, I feel defeated! I know sometimes it's necessary, but I know you all understand as well...
I'm hoping the 2 pain pills (just Norcos) will let me get some sleep tonight.
Sorry, I just really needed to vent...and I visit here from time to time for new information, but I don't post often... eyes
I posted a lot in the beginning when it took nearly 5 months to get me under control, so I'm thankful for this group and recognize a lot of you still!
Post Edited (Kaycie) : 7/8/2008 12:23:33 AM (GMT-6)