I am the newest member and Indian. Came to USA in 1998.
Dx with CD in 2004 at the age of 33, male. Had my First colonoscopy, Fistula surgery and abscess removal at the same time.
Taking 4g of Pentasa/day.
Turmeric pills, Flaxseed, Fishoil.
Trying all kinds of diet changes - reduced consuming meat, Stopped comsuming milk/milk products and bread products(flat bread seems fine). Trying to be only on Rice and Veggies.
Last month i.e June 2008, Had a Fistula surgery(no abscess) with seton replaced and a Colonoscopy. Didn't hear positive news.
Started having a stricture in the sigmoid colon but not serious enough at this point. No inflammation in terminal ileum. Other areas are inflamed but not serious enough. But was very clearly told by Colo-rectal surgeon(who did my colonoscopy), that if I am not aggressively treated, I will be 'very soon' back to him for a major surgery.
Currently, I have no diarrhea or abdominal pain. My fistula is healing well. Not sure, if I am in a remission period.
Will be seeing my GI end of this month. In the past, my GI discussed abt Remicade/Humira, but was not a candidate for those medications because I have latent TB. Was told most of the Indians have latent TB because of the BCG vaccination.
Whatever it is, I need to take TB antibiotics for abt 9months before I can start on Humira/Remicade.
Looks like I have very limited options for an aggressive treatment.
I regularily talk to my family back in India. They have no clue as none of my family members have CD.
Thought about moving back to India and my dad consulted few GIs there. They are aware of CD but no experience dealing with it. Forget abt medications, they are either not available or too expensive to import.
Totally confused and depressed.