Hi gachrons and everyone else! I have been having quite the time of it lately. The only thing functioning well is my intestinal tract. My gut seems to be in remission - most likely from the prednisone and Imuran. The Remicade and Humira really got and kept my intestinal troubles in remission. And the Imuran seems to be doing the trick since stopping the biologics last December.
My current problems stem from two things - the lupus and the anhylosing spondylitis. The lupus flare really wiped me out. I had a fever for 2.5 months and the exhaustion was overwhelming. So when they put me on a prednisone taper I soon got to feeling better. When I tapered down to 5 mg some of the symptoms returned and then my SI joint decided to get into the picture. I awoke Monday morning completely unable to bear weight on my left leg. I have not ever had problems with my left SI joint. It was always the right side before. This flare was so severe, I thought perhaps my left femur was collapsing from the AVN. Now after 2 days, I know it's the left SI. Also they started me on Plaquenil last Friday so there is always the possibility of some rare side effect from the med...
In the midst of all this, the vascular surgeon said I needed an arterigrom on my left leg and a stent placed into the artery that is narrowed. With all this going I had a sense of disaster were I to go along with the surgery. So I emailed him and said I wanted to cancel. Well, he just emailed me back and said I have to come in tomorrow afternoon so he can check me out...
The one thing that kept me sane after my husband died suddenly two years ago was gardening. Digging in the dirt is a passion and the best anti-depressant I know of. I have been so overcome with physical problems I do not have the energy or ability to work in my rather extensive garden. When I came to this realization the other day it made me cry.
Thanks for asking about
me..and double thank you for letting me vent.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.